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NTM/MAC/MAI: We must advocate for ourselves

MAC & Bronchiectasis | Last Active: Sep 17, 2022 | Replies (145)

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@kaystrand

Heather, My list is short.

Both parents had Tuberculosis before I was conceived, I did take hormones for peri menopause. I am 5'9" and have always been thin. Thyroid issues. That's it, was very healthy till I got pneumonia a few times in my 60s and then MAC!

Did I put this info in the right place? Who is collecting this data? Good idea.

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Replies to "Heather, My list is short. Both parents had Tuberculosis before I was conceived, I did take..."

Kay, I am 5'3 .. have always been slim. Was diagnosed in 2007 with MAC .. age 64.. Been on thyroid medication since mid 40's. Hormones after menopause for about 5-6 years.

In 2003 had TERRIBLE pneumonia .. the doctor did NOT culture my sputum (I didn't know better back then to require it) .. so was horribly sick for 3 months .. 5 round of antibiotics and 3 rounds of steroids. I always felt this weakened my lungs .. BUT my Mayo doctor said it did not. He has to be the better judge. They just do NOT know how the mycobacterium gets into our lungs.

Hi @kaystrand I was talking to a lady the other day with lung problems whose mum had had TB before she was born also, I wonder it that does have something to do with it.