Connect
← Return to Anyone had cancer return while taking hormone therapy meds?
Discussion
Anyone had cancer return while taking hormone therapy meds?
Breast Cancer | Last Active: 4 days ago | Replies (240)Comment receiving replies
Thanks for sharing and wondering as you are 5 yrs out and a critical time for us with lobular cancer. Do you have annual MRI's - I have very dense breasts and have had to beg for annual from my oncologist at Dana Farber but I have insisted! However many lobulars spread to bones and I'm hopeful that liquid biopsies can be another tool. Have you had any blood work since your diagnosis - they can match blood to your tumor markers and see a lot!
Replies to "Thanks for sharing and wondering as you are 5 yrs out and a critical time for..."
I have MLBC . Had several reccurrences over the course of 12 yrs. Double mastectomy on advice fr surgeon . That surgeon left 1 or 2 "rogue" cells ( she told me that was found, in lymph node area it was not a great concern to her. :(:( I felt a lump there a few yrs later , I had VerY substandard care--only saw an oncologist nurse was and she was very casual and said "Oh I think that's scar tissue" I naively took her word for it, then another oncologist a few yrs later said the same. I finally got someone to take it seriously and biopsy the grown lump. Positive, but not in a node and it was cut out & rad. , but it did go to a bone--Vertabrae L5---discovered 3 & 4 yrs later after another lump in left armpit area again, surgery & strong 5 blast sessions of rad-- disfigured more but not in node 🙂 and some lung sclerosis in that upper region, rhey say its typical. Had PA wanting to catscan my spine-'22 there is a lesion they saw but thought it was a bone island! all docs agreed late '23 ...scary biopsy: Drill into muscle/fat to get 3 core samples. Positive for MBLCk. Lobular IS there evidence that Lobular goes to bone (Is it a high % compared to Ductile? IS that statistic(s) available to look at ? Is it your D Farber Oncologist who said it . There's more research these days from Oncology staff.about lobular.BC
Connect
Hello. Not sure what you mean by "critical time" but I have mammograms in June and MRI's in Dec. I also see someone (oncologist, surgeon, rad. oncologist, primary care) every 3 months. I have full blood chemistries every 6 months (including calcium, liver and kidney). I don't not do "cancer type" tumor marker tests. I honestly could not handle that on the reg. I work two jobs (yes, even at 74) and so far all this has worked. I am unhappy when I hear that people have to beg for follow-up imaging. What I have seen is that this is often tied into whether or not someone is eligible for medicare. I also have 100% coverage medicare supplemental insurance. Regardless of the reason, it doesn't seem fair to me. I am glad you insisted!