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Anyone had cancer return while taking hormone therapy meds?
Breast Cancer | Last Active: 4 days ago | Replies (240)Comment receiving replies
Right out of the box I will say I never had an Oncotype DX. They gave me no choice but to have dose dense chemotherapy and 6 weeks of radiation, Zometa infusions for 3 years and an AI for 10 years. I went for all of it 100%. As a 69 year old woman (and looking back, I am 5 yrs out-now 74), I guess I went kind of big with all of this. Not that I don't worry about recurrence (I think we all do) -- but I'm glad I made the choices I did. I will at least know that for my part, I did all I could at the time. I had ILC, 5 tumors in one breast and 10 out of 16 nodes diseased.
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Thanks for sharing and wondering as you are 5 yrs out and a critical time for us with lobular cancer. Do you have annual MRI's - I have very dense breasts and have had to beg for annual from my oncologist at Dana Farber but I have insisted! However many lobulars spread to bones and I'm hopeful that liquid biopsies can be another tool. Have you had any blood work since your diagnosis - they can match blood to your tumor markers and see a lot!
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My diagnosis was IDC ER/PR+HER2- unless you have this particular diagnosis an ONCOTYPE will not be used as it cannot measure outside of this paradigm.
My ONCOTYPE revealed that I would not benefit from chemo so not a consideration.
The radiation was questionable and I went with NOT and I regret it.
This appears to be a rogue cell that got away ( rad would likely have killed it).
It’s 4mm in area of original tumor. PET tomorrow to rule out a major problem. 🙏🙏🙏
Will def have radiation now after resection.
Can anyone chime in on their radiation experiences and side effects?