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Legs weakness with Idiopathic Feet Neuropathy
Neuropathy | Last Active: Oct 4 3:03pm | Replies (48)Comment receiving replies
@johnnyguitar
Hopefully your doctor has evaluated your weakness since there are so many causes of weakness. I’ve had neuropathy for well over 30 years. Closer to 40
years. It started with soreness of my feet and all the various agonizing pain sensations. Eventually the pain went away and was replaced with numbness as the condition worsened. Unfortunately other complications followed, including leg weakness, bladder & bowel issues. Also ED with lack of sensation & numbness to varying degrees in the urethra and bowel. My neuropathy is stage 4 and considered permanent. I took 3,600 mg of Neurontin and also Lyrica neither of which helped the neuropathy or my seizures. I never searched for cures by way of nutrition, vitamins, minerals, various devices, other types of medications or alternative treatments although I did take opioids for other problems and the Fentanyl patch was the most effective. I read quite a bit of people searching for cures but read little regarding about them being successful in easing neuropathy symptoms. I go to physical & occupational therapy for my weakness and balance issues caused by neuropathy and exacerbated by seizures and seizure medications.
Jake
Replies to "@johnnyguitar Hopefully your doctor has evaluated your weakness since there are so many causes of weakness...."
Check the side effects of all your meds. You may have a low sodium issue. Seizure meds lower sodium, low sodium can cause muscle pain and bring on seizures, it's a vicious cycle for a lot of us.
I have seizures and neuropathy, the neuropathy started 15 years ago, reason unknown. It started with the loss of feeling in the bottom of my feet, the pain started a few years later. Vitamin B12 injections every 2 weeks and lidocaine patches give me some relief. Today is one of my bad days with almost unbearable pain. it been 10 days since my last B12 injection, don't know if there's a connection.
The seizures started after a car accident 25 years ago. It took 5 years and 6 neurologist to find the right mix of meds to get my seizures under control. Seizures came back with a vengeance after a bad fall in October 2023.
My neurologist added Levetiracetam (Keppra) to my meds 4 weeks ago, Keppra and other seizure meds can cause muscle pain, however, this pain feels deep in the bone. I'm calling my neurologist today about alternative medication.
Don't know where to go from here.
I have found some relief from foot and leg neuropathy by doing exercises in a pool; and by stimulating the bottoms of my feet and my leg muscles in the hot tub using the stream of water gushing into the hot tub. It is delightful to exercise in water because it is so much easier to move in water than in the air. BB
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Exactly same for all Symptoms you have, my condition also I believe started 30 years ago with simple not being able to power walk and just jogged on my toes thought it was the Indian in me, didn't give it much more thought, my kids said I made a lot of noise stomping my feet again didn't think much of it, then 15 years go by and Balance problems
the extreme pins, needles and numbness hits and it been down hill from there.
Gabapentin Civillian Docs for years which caused extreme fatigue now thanks to VA I'm doing so much better with no side effects of Pregabalin (Lyrica). That's my story.