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Newbie MAC caregiver with questions

MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)
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@ritapearl

Dear Sue, I am ritapearls husband and caregiver.Yes we are still around and we are overwhelmed with hope from each of your advises.
Rita’s therapy for the last 7 months is Arikayce, azithromycin 500,ethanbutol1200 mg all 3 times a week,albuterol and 3% twice a day.I have come a long way meaning no pneumonia or flareups.Still mac positive.She is eating better and going to physical therapy.We are getting outside more but refrain from anything indoors due to Covid concerns.I am constantly seeking new therapies and offer them to our Bronchiectasis Team at NYU Langone Pulmonary.Sometimes I think you help as much.
I hope your health is up to par and enjoy the summer.
Richie

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Replies to "Dear Sue, I am ritapearls husband and caregiver.Yes we are still around and we are overwhelmed..."
Sue, Volunteer Mentor | @sueinmn | Jul 22 8:34am

Richie -
Thank you so much for your kind words. When we communicate with other members, we often wonder what has happened when we don't hear from them for a while.
I am so glad to hear that ritapearl is doing better. It will also be encouraging to others here, who often feel there is no "light at the end of the tunnel."
I too remained MAC positive throughout my treatment, but once we stopped (after over 18 months) saline has kept me healthy enough to stay off more meds.
Please give her a big hug from me, and tell her to "hang in there", and thank you for stepping up to take care of her.

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