I have found it to be life altering, physically as well as emotionally. For me, it is a huge disappointment because I'm simply not a well person and I always have been. I was an athlete. Now I have overwhelming fatigue and a lot of damage in my lungs from MAC and Bronchiectasis .
On the other hand, when the radiologist read the first CT scan and reported it was highly suspicious of metastatic disease, Recommending a pet scan, I thought I probably had lung cancer. That was so profoundly sad. So I'm just thankful that I can live with this MAC lung disease.
But it's had a huge impact on my life.