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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)Comment receiving replies
@kristyinoregon That’s quite a journey!! I’m wondering, though, if a doctor or nurse practioner has examined your ears. i had ear problems just like you describe and a doctor found a large amount of wax in my ears. it happened twice, but never before Clippers. the doctor said that ear blockages are common in those with autoimmune diseases. I’m very careful with my ears now: no Q-tips, no nothing! and I let water in my ears while showering to keep the wax coming out. Buzzing and humming in your ears is tinnitus, but it might also be related to your stuffed up ears.
You are still very early in the clippers journey and all the “extras” should fade away with time. It just takes time and perseverance! You have a very good attitude which will help immensely!
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Becky,
Thanks for your question. It’s a good one. Yes, we’ve checked all that out. My ears are textbook in terms of structure conductive functioning. We even have imaging of the cochlea. No fluid in the middle or inner ear, the drum is intact and functional, very healthy. No wax buildup, or obstructions of any kind. I had been hoping it was something that could be fixed. Not sure if it’s damage in the PONS, or if it has to do with the brain inflammation that they see on the MRI.
On another note, I have read through most of the postings and do not see anyone talking about pressure in their head or burning in their skull . I wonder about that. I need to read through them again and find the, when I have good cognition, less fog. And, I have only seen a few posts that refer to tinnitus. I will probably reach out to them, need to read back through to find them.
Oh, and thank for the hug and encouragement.
Needed that. 😊