Hi @windyshores
I did several Reclast infusions as part of early treatment beginning in 2011 through 2014 or 2015 (records aren’t clear, wait, what!?). After a five/six year holiday, I had two more infusions 2020 and 2021, all without incident. The doc now says that my infusion will be given over a span of about an hour and I am willing to drive over 150 miles round trip to make sure I have the best experience possible.
I’ve had four total compression frax - L1, L3, L4 and T12. I knew about the first three, although I only had severe pain with the first . . . and I don’t know which one was first. After the T12, my doc prescribed Tymlos which I tried for about 8-1/2 months with devastating consequences. Next stop: Evenity which I just finished at the end of June. I am currently waiting for the infusion team to set a date/time for the Reclast infusion.
You are correct about flying a plane in the dark!!! Dangerous situation, no good flight plan. 😳 Quite honestly, Prolia scares the bejeepers out of me; it holds OP at bay but it can come roaring back with a vengeance if meds are discontinued.
I’m sorry you’re having so much trouble from your frax - they can be pretty debilitating. Unfortunately, it’s difficult to tell whether our aches and pains are the result of injury or our meds. Best wishes to you, windy!
Cheers!
@beanieone I am currently wondering if Reclast is causing my spinal pain. I hate to say it and don't want to dissuade anyone else from trying it! (I was good on Tymlos)
Oops sorry folks for the tangent!