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CTX Testing Question

Osteoporosis & Bone Health | Last Active: Jul 25 6:50pm | Replies (29)

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@beanieone

Hi @windyshores

I did several Reclast infusions as part of early treatment beginning in 2011 through 2014 or 2015 (records aren’t clear, wait, what!?). After a five/six year holiday, I had two more infusions 2020 and 2021, all without incident. The doc now says that my infusion will be given over a span of about an hour and I am willing to drive over 150 miles round trip to make sure I have the best experience possible.

I’ve had four total compression frax - L1, L3, L4 and T12. I knew about the first three, although I only had severe pain with the first . . . and I don’t know which one was first. After the T12, my doc prescribed Tymlos which I tried for about 8-1/2 months with devastating consequences. Next stop: Evenity which I just finished at the end of June. I am currently waiting for the infusion team to set a date/time for the Reclast infusion.

You are correct about flying a plane in the dark!!! Dangerous situation, no good flight plan. 😳 Quite honestly, Prolia scares the bejeepers out of me; it holds OP at bay but it can come roaring back with a vengeance if meds are discontinued.

I’m sorry you’re having so much trouble from your frax - they can be pretty debilitating. Unfortunately, it’s difficult to tell whether our aches and pains are the result of injury or our meds. Best wishes to you, windy!

Cheers!

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Replies to "Hi @windyshores I did several Reclast infusions as part of early treatment beginning in 2011 through..."

@beanieone I am currently wondering if Reclast is causing my spinal pain. I hate to say it and don't want to dissuade anyone else from trying it! (I was good on Tymlos)

Oops sorry folks for the tangent!

Thank you for sharing your journey with this forum! Would you be able to also detail your “devastating Tymlos consequences?” Were those intolerable side effects from the daily injection or worsening OP after the 8 1/2 months? TY!