no strength in my arm or hand

Posted by noteworthy @noteworthy, Jul 18 3:30pm

I have a referral to Mayo Clinic. What else can be done to help as it is getting worse?

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@noteworthy

I have the normal degenerative disc disease, bulging discs, etc but the nerve testing shows neuropathy of wrist and elbow. Widespread denervation in upper
extremity indicating neurogenic process, differential to include polyradiculopathy or motor neuron disease. Not sure what that all means
but I know its not good.

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@noteworthy
It would be good to stop/slow the potential attack on your nerves and determine if autoimmune related, deficiencies or toxicities of vitamins/minerals, etc. The sooner someone can diagnose/treat you the better.

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@dlydailyhope

@noteworthy
It would be good to stop/slow the potential attack on your nerves and determine if autoimmune related, deficiencies or toxicities of vitamins/minerals, etc. The sooner someone can diagnose/treat you the better.

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I agree, don't think it is autoimmune related. I drank 3-4 glasses of wine every night til this all started, but thought I was OK and somewhat healthy. NOT

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@noteworthy

I agree, don't think it is autoimmune related. I drank 3-4 glasses of wine every night til this all started, but thought I was OK and somewhat healthy. NOT

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@noteworthy
I have learned wine/alcohol is bad for your central/peripheral nervous so avoid wine now (which I used to love a good glass of red wine now and then). I have small fiber and peripheral neuropathy (affecting large and small fibers) so trying to preserve what nerve system health I have left.

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@dlydailyhope

@noteworthy
I have learned wine/alcohol is bad for your central/peripheral nervous so avoid wine now (which I used to love a good glass of red wine now and then). I have small fiber and peripheral neuropathy (affecting large and small fibers) so trying to preserve what nerve system health I have left.

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I slowed down a few months ago, then went to one only, now for past month or two, none. So are u near Pensacola? What doc have you been using if I may ask?

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@noteworthy

I slowed down a few months ago, then went to one only, now for past month or two, none. So are u near Pensacola? What doc have you been using if I may ask?

Jump to this post

@noteworthy
I live up in New England. I am currently seeing an orthopedic spine specialist who has good ratings online (he did my ACDF c5-c6 surgery to stop the myelopathy spinal cord compression injury/progression of damage). I also have a neurologist, rheumatologist, and primary doctor I am working with. My primary is helping me now manage my Hashimoto’s thyroiditis/hypothyroidism and depression. I should get a good psychiatrist to help manage medications and psychologist for depression/cognitive behavioral therapy for living with chronic pain.

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@dlydailyhope

@noteworthy
I live up in New England. I am currently seeing an orthopedic spine specialist who has good ratings online (he did my ACDF c5-c6 surgery to stop the myelopathy spinal cord compression injury/progression of damage). I also have a neurologist, rheumatologist, and primary doctor I am working with. My primary is helping me now manage my Hashimoto’s thyroiditis/hypothyroidism and depression. I should get a good psychiatrist to help manage medications and psychologist for depression/cognitive behavioral therapy for living with chronic pain.

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I have the same docs too but not a psych one but probably need one. A huge
hug to you!

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I have that. It's been diagnosed as severe stenosis. I've had discs replaced at C4-5 and C5-6 in the last 18 months. I play blues guitar as a hobby that that's very hard to impossible to do anymore. I've lost a fair amount of dexterity. I use a lot of arthritis cream for sure. The disc replacement stemmed off more damage but my hands aren't any better. Maybe someone here will have that magic thing we didn't know about to make it better?

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@johnnoregon

I have that. It's been diagnosed as severe stenosis. I've had discs replaced at C4-5 and C5-6 in the last 18 months. I play blues guitar as a hobby that that's very hard to impossible to do anymore. I've lost a fair amount of dexterity. I use a lot of arthritis cream for sure. The disc replacement stemmed off more damage but my hands aren't any better. Maybe someone here will have that magic thing we didn't know about to make it better?

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I feel like my hand and arm left are getting worse. I cant do much with left hand.
Is some kind of surgery a possibility?

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Have you had a nerve conduction test? That revealed nerve issues in my cervical spine that were directly related to my ability to use my left hand. I surgically had 2 artificial discs inserted in my spine to relieve pressure on nerves causing my arm and hand weakness. It is better, but I am now getting cortisone shots in my left thumb every 6 months. That also helps.

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@johnnoregon

Have you had a nerve conduction test? That revealed nerve issues in my cervical spine that were directly related to my ability to use my left hand. I surgically had 2 artificial discs inserted in my spine to relieve pressure on nerves causing my arm and hand weakness. It is better, but I am now getting cortisone shots in my left thumb every 6 months. That also helps.

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I have had nerve testing upper arms and lower legs, mri of cervical, awaiting
MRI of lower back. From what you are saying maybe there's hope for me!
Thanks,

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