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Recently diagnosed with Gastroparesis

Digestive Health | Last Active: Sep 29 1:25am | Replies (76)

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I was diagnosed with Atonic Bowel after I had chronic constipation since I was a toddler. I had taken every laxative and softener OTC by my 30’s and finally went to a gastroenterologist. Sinc 2011 I have been in the hospital so many times I can’t keep track of. I am very glad for my doc. He knew something else was wrong and kept looking. I was diagnosed with gastroparesis in 2014. I need a special diet and I need to take Miralax ( one scoop 2-3 times a day to help me be somewhat regular.Thanks 4Shaylyn God Bless

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Replies to "I was diagnosed with Atonic Bowel after I had chronic constipation since I was a toddler...."

Yes, in 2020 with severe Gastroparesis. I had many other digestive disorders prior, so medication was not an option as most of it already stopped working for me, and the disease was already severe so my options were all surgical. I have only gotten the gastric stimulator so far but I feel like I will bee needing a feeding tube in the next year or so. This disease really effected my life and is very hard to manage. I can't eat and function or go out in public, so I have to plan my meals around working, errands, etc. I don't have a social life anymore because I'm exhausted from the day to day basics so I rest on days off. And diet doesn't matter for flares in my case. The stimulator helped me stop throwing up, but I still get the debilitating nausea about 50% of the time. My main problem with the stimulator is only having one person in my area that can program it, so I can't see any other GI specialists.

The gastric emptying test was done when I demanded a referal to another doctor, so it was a surgeon who finally ordered it. Which is funny because my GI actually gave me the emptying test 6 years prior and knew it was developing but didn't keep up with monitoring it. He didn't even think to order it when my symptoms were literally the exact words as GP symptoms listed that I used to tell my GI. Extreme nausea all the time, throwing up, very bad bloating, abdominal pain and pressure, constant GERD, you basically feel like you have the worst stomach flu you ever had and it never goes away, and major body changes from malnutrition, and of course the constant fatigue. I lost my weight after the diagnosis. When the symptoms were bad before I retained a ton of water. But when I lost it, it went really fast! 30 lbs in 4-5 weeks. And now, I can drop 15 lbs in a week and a half in a bad flare.
So my experience was just getting the right doctor to actually listen to my symptoms and ordering the test.
It's not evasive, so there's no harm in just getting it done. If you don't have GP, they can rule that out and go from there.

I had the gastric emptying test which was positive. Trying the recommended diet now but still the swelling bloating nausea especially if I bend over is still there. I’m very complicated due to having an ileostomy and and two or three hernias above the midline. I also have Sjogrens and other autoimmune diseases.

Hi dancing1 Yes you are complicated.With my EPi and being on Creon it doesn’t agree with my CIC and gastroparesis. When first diagnosed I was on an antibiotic ( back in 2014- can’t remember) but it didn’t help. Stress is a big trigger and I’m sure with Sjogrens you have some stress. After all these years I still get bloated and nauseous. Very rarely do I vomit.
On SingleCare it recommends green tea for bloat. and nausea. I’m not a tea or coffee person so I will have to try it with some lemon.
One of my old oldest & dearest friends has an ileostomy. It’s odd that you mentioned that. She has been having wicked diarrhea for they can’t figure out why. She’s had it for about 9 years and it’s never happened before. I ‘d like to hear from you. I avoid not. Talking about my medical problems with most people because then they say all kinds of sympathetic things which makes me feel uncomfortable.
Shaylyn 4