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Anyone in the Encore Arikayce study?

MAC & Bronchiectasis | Last Active: Jul 29 3:05pm | Replies (30)
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@lvnl

Thank you @mariegrace and @thorne, I am enrolling in the study... I will be on the 2 antibiotics + Arikayce 3x/week for a year. Won't be starting til a sputum sample I give tomorrow shows up positive so it will be a while. @thorne, did you know you had converted before the year or only after?

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Replies to "Thank you @mariegrace and @thorne, I am enrolling in the study... I will be on the..."
mariegrace | @mariegrace | Jul 21 11:34am

I was positive for MAC after dx of BE. Been stable for 5 years but now chest xray and CT worse so time for tx.
I was thinking about going to NYU but I like my pulmonologist at NYP Columbia Presbyterien Dr. Keating. Conferred with a friend and he said NYP program is fine.
Good luck fellow New Yorker. Keep in touch!

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thorne | @thorne | Jul 21 11:47am

Weirdly, some study sites will tell you the results of your monthly study sputum and some do not. Mine did not so they would just take a separate sputum every few months and tell me the results of that. So I did know that I converted.

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