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@isabelle7

@loriesco , @lilyann

I'm with @loriesco all the way about medical miracles!! I've known some personally and I too hope you will be one of them!! Life is short and we must remember to enjoy the small things that bring us pleasure - a bird landing on the windowsill, hopping around and looking in as though to say "hi." We have lots of birds here because we feed, water and house them and I am amazed at how much joy they bring. Recently two sets of babies were born in houses in a tree just outside our dining room. We've been able to watch them grow, watch them grow anxious to get out into the world and finally taking their first flight. Then hopping from limb to limb of our tree, practicing short flights until they finally get the nerve to fly across the yard. It's a sight to see, if you're a bird lover. That's just one small example of the many, many things in life we have to be thankful for and that we have to enjoy. I hope you have nature around you because for me, it's nature that brings so much joy, happiness and peace to my otherwise pretty tumultuous life. In the past year my husband went from a healthy and strong man who I've been married to for 43 years. Just over a year ago he developed something called PMR, then in Feb he developed Giant Cell Arteritis which was devastating and scary. But we were plugging along, trying to get him through that without losing his sight or having a stroke. He had to take high doses of prednisone for both illnesses which is how he developed steroid-induced osteoporosis. The osteoporosis has proven to be the most difficult of all to deal with. He starts on Forteo on Monday. In the meantime, just when we thought we were making some headway (his labs are coming back really good lately and his most recent x-ray showed no new fractures - he has 3 - and that his fractures are stabilizing.) Which was all great news! Then on Friday he went in for a bladder ultrasound before his first urology appointment on the 31st of this month (they found narrowing in an unrelated CT scan), an appointment I didn't go to because we thought it was so simple. When he got home he walked in limping and looking like the end of the world had struck. Evidently, after urinating there was still too much urine in his bladder so to avoid possible damage to his kidneys, they told him he could not leave without a catheter. So now we are dealing with this new issue and neither of us knew the first thing about catheters. However, after two full days dealing with this thing, watching more YouTube videos than I'd care to admit, I finally now feel I'm a pro at this. But, it was quite rude of them to send him home like that without even teaching him the first thing about catheter use. Anyway, we will get through this as it's a temporary fix. I'm praying!

I'm not sure how I got off on that topic but when I started out wishing you the best and wishing for a miracle! I'm going to tag @windyshores to bring her up to date on my husband.

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Replies to "@loriesco , @lilyann I'm with @loriesco all the way about medical miracles!! I've known some personally..."

@isabelle7 ,

Thank you for your personal account of what you and your husband are going through. I am praying for more joys like the birds, peace, healing, and guidance. Your generosity in encouraging others and sharing of your life is inspirational. I wish you joy and all the best.

Thanks for sharing how you cope. Yes, nature is my thing - along with social media and ART is my first passion. Medical stuff gets in the way but I continually find avenues to sustain, improve, and stay "in there." Yesterday was a horrible day to get thru - today I am BETTER and more focused. I just don't know why some days are physically better or worse anymore! So it helps to always be GRATEFUL! yesterday around 3:30 pm I just had to sit and star into space for awhile. So I decided to REACH to the gratitude side and be thankful that I COULD have the stability to just sit still and stare into space! I'm so used to being busy that I can be grateful I have a decent home, AC if I need to use it, and doggy love, to just rest! Today I am back at "busy!"
The catheter thing caused me problems at the hospital so I appreciated your comments. I was really perturbed when TWICE it caused me problems and it was dismissed by everyone. Eventually I was diagnosed with Interstitial Cystitis (IC) -- like I really needed one more thing on top of the bone degeneration and surgeries, coronary vascular disease and IBS.... I go to a urologist now for a treatment called Instillation therapy but I have found something great I'll share: I drink Aloe Vera Juice "inner filet". I buy a 32 ounce jar for about $6 - $10. It lasts a couple months. I put a tablespoon or so in anything acidic - morning coffee, wine, tomato sauce - I can't taste it. But it has helped with urinary functioning tremendously! I am prone to eating all the stuff you shouldn't with urinary tract irritations like the catheter and the nasty medications. So it really helps cleanse the insides. Just a little does you. There is even a dental spray with aloe I give the old dog and put in his water! My Asian neighbors seem to know the drill! They boil a little of the plant innards in water and drink it as a daily tonic. I too learn from youtube now more than doctors. And the forum here! Best wishes! Lori