@mikedmc27 I’ve been on cell cept for about 4-5 years. No problems, except for a very serious case of diarrhea. Cheanged to another form of CC - Myfortic- with no problems. you do have to set a 12-hr dose schecule. that’s been hard because even though my alarm wakes me up, i seem to not pay attention. CC is a steroid sparing drug, not a steroid. I feel really good on CC but might be coming off it as rituxan has worked well so far. A 6-yr old will be harder than CC!

I have MS, as well as medical sensitivities snd allergies. I have been good with copaxone as well as strict vegan keto diet snd lots of supplements including gaba for muscle spasms. NOT gabapentin, just plain old gaba ftom the health food store. Do research please before attempting any of these drastic measures. It's possible to do a "cheater keto" of eating healthy ie Mediterranean style diet, and adding mct oil as tolerated/recommended. Mct oil is already fractionated to a form that can only be used as ketones. I found Dr gundry's research on this fascinating. However, my body no longer tolerates most kinds of starch and sugar so I carefully trod along.
The main reason I'm replying is because I have major issues with steroids. I have found HMB to be wildly good, couldn't believe it actually. It's a body builder supplement that helps the body hold onto muscle etc instead of breaking it found constantly. Please research, but didn't react with my other stuff and that says a lot. They recommend vitamin d with it, as always check your mineral levels snd calcium intake vs magnesium intake as part of your vitamin d regimen, as too much vitamin d is rare cholecalciferol deals eith calcium deposits. Again, lots of medical journals you can read about the dose.
Hmb was shown to help elderly snd immuno compromised people achieve significant results - this is new research.
Hopefully you find what works for you, took the time to reply because you need to stay well for your kids, they need you.
Certain diets, like the one I described, have been shown to help the body remylenate by feeding the dendrites, but the results can be years so please don't give up.
The keto diet took my brain fog away pretty significantly. I have a meat allergy, so I blend my liquid diet of sunflower seeds, almonds, pea protein, coconut etc with vitamins, add mct to everything and voila. It's some inspiration in case someone on here is desperate, hopefully the meds work and you won't be desperate.