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Ready to throw in the towel

Prostate Cancer | Last Active: 9 hours ago | Replies (73)

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@scottbeammeup

I read that as a G7 I could go up to five years without symptoms if I chose no treatment, and that was my plan until several family members BEGGED and cried for me to try some kind of treatment, so I reluctantly agreed, but I had no idea treatment would be this awful and painful so part of the reason I avoid them now is anger. My original plan was to just take the five years (or whatever it was) and then do medical assistance in dying (legal in my U.S. state) if/when it became painful.

Now I'm told I could live 10-15 or more years but I can't imagine feeling this way for that long. All kinds of physical and mental problems I NEVER had before starting ADT. The joint pain is the worst but doctors in the U.S. no longer care about or treat pain in any meaningful way and I have a bleeding disorder so can't use Aleve or Ibuprofen (Tylenol is useless) and I'm too old to know a drug dealer to buy pain meds from (only half kidding). I tried THC gummies and they work but I'm not a huge fan of being high.

Still, I suppose somewhere in me is a shred of hope because I keep going to the gym to do resistance training and taking my dog for 5 mile walks. I think the best way to describe how I feel right now is like a birdcage but the door opened and the bird flew away and now there's just the empty cage.

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Replies to "I read that as a G7 I could go up to five years without symptoms if..."

I'm sorry about the joint pain. And the anger is fully understandable — it doesn't matter whether it's deserved or not, because you're the one experiencing all the hard parts, and you have a right to feel how you feel. Anger can also eat away at you though, so for your own sake, you might want to take up the advice elsewhere in this thread and talk to a professional — since you're a gym rat 🙂 if you prefer you can think of them as a mood coach or trainer (which is really what they are) instead of a therapist.

My ARSI (Erleada) makes Ibuprofin practically useless; opiods give me vivid nightmares (I was on them for a couple of days post-surgery), and CBDs did nothing for me. Because my pain was mostly nerve-based (from the spinal compression and surgery), Pregabalin (Lyrica) helped quite a bit, but I didn't love the side-effects, so after consulting my medical team, I gradually titrated off it.

I liked the part about taking your dog for walks. There is a reason they say "dogs are a man's best friend". Maybe when having a not so good day, focus on how much that dog enjoys walks with you. We can be having a bad day and damn if they don't meet us at the door all excited to see us. My dogs and cats have since passed but I still enjoy watching the goldfish swim about. Best to all