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Merkel Cell Carcinoma: I'd like to hear from others
Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)Comment receiving replies
I was dx the end of Dec 1023 and had surg in Jan 2024 and 30 radiation treatments in Feb and March. It is a scary thing and I had never heard of Merkel Cell. So far my scans are clean ( thank God) and my face is healed and I’m getting stronger and better every week. Get your surgery scheduled as soon as you can and get your treatment started as soon as you can. I was able to move up both my surgery and original biopsy by cancellations and lots of people praying. Find a treatment center that is familiar with this disease and treatment. Stay positive and active, you can do this. Praying that you beat this!
Replies to "I was dx the end of Dec 1023 and had surg in Jan 2024 and 30..."
Lynn, I do worry about getting this done quickly…I think my job—and my husband’s—will be to research to find experts who will proceed as quickly as possible. Your story is inspirational!
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Hello Lynn99, it is great to hear how you are doing! Most of my radiation side effects are dissipating and this week I complete my 20th infusion with no side effects. It appears the Merkel is in check but after four years my throat cancer returned. Fortunately, I was able to have surgery at Barnes hospital in St. Louis and it looks like I have been granted a reprieve in that the margins were clear after removing the cancer.
I'm still active playing golf, walking, working out and taking care of the yard. I hope you are enjoying your walks in the woods.
It was good advice you gave to Lynnmerk1. We are all in this together!