I was dx the end of Dec 1023 and had surg in Jan 2024 and 30 radiation treatments in Feb and March. It is a scary thing and I had never heard of Merkel Cell. So far my scans are clean ( thank God) and my face is healed and I’m getting stronger and better every week. Get your surgery scheduled as soon as you can and get your treatment started as soon as you can. I was able to move up both my surgery and original biopsy by cancellations and lots of people praying. Find a treatment center that is familiar with this disease and treatment. Stay positive and active, you can do this. Praying that you beat this!

Hi My husband was diangnosed with Stage 3B merkel cell on his nose ....in summer 2021 ....he had it removed and all lymphnodes in R side on neck ...One lymph node did have MCC in it ....so he had 30 rounds of radiation ....fall of 2022 a follow up CT scan showed an enlarged Lymphnode in throacic region - lower chest ....around the Aorta...so non removable ...but they biopsied it and it was positive for MCC ....it increased rapidly within 7 months from2.5 cm to 12.7 cm ....so he received immediate another 30 rounds of radiation ....and followed by Immune therapy in Canada we call it Avelumab ...US I believe call it something with a Benovcia ...something like that ....his tumor after the radiation and 3 months of Avelumab went down to 5.4 cm ....with NO side effects ...doing well ...waiting on the results now for the 6 month CT scan results ....if you have any questions pls feel free to ask ..hugs wishin you all the best