The EBV is more than just the kissing disease or mono. Mine has been raised for over four years. When active I feel like I have the flu and my lymph nodes swell. My head will hurt really bad plus general malaise. There is other test than the common EBV to see if the antigens are currently active. My family doctor ran mine and said you had mono at some point I told him no it’s more than just the kissing disease. He looked it up in front of me and said you’re right and apologized to me. That’s when additional testing got done on the EBV it can become active randomly like if you had a stressful situation or if you don’t get enough sleep. Several things can reactivate it. Try asking him to do additional testing on the EBV when you are feeling like this. I hope it helps. My family doctor sent me to an immunologist and a rheumatologist. If your primary care doctor will not refer you ask your ob/gyn if you see one. My ob/gyn caught it to begin with she test for it when you have your yearly exam. Then I asked my family doctor to retest for it. Just some thoughts to help you out. My labs used to be normal when I was referred to a rheumatologist he did additional testing found out my labs are not okay. A rheumatologist it feels like takes 15 tubes of blood (quit counting after 10) but they test for a lot more than a family doctor. If you like your family doctor try seeing a different doctor get the referral and then go back to your doctor if you feel like he is not listening to you. Please understand I am not recommending you change doctors. I am just trying to give you ideas on how to possibly get a referral to a rheumatologist or whatever doctor you want to see for further testing. I read up and found Dr Anne Oaklander she gave me a bunch of labs to have ran before I saw her in Boston. I live in Texas.. I went to her for answers and found them. If you would like a copy of those requested labs I still have a copy. Take them to your doctor and request they be ran. This is strictly up to you. Just some ideas.