Pain, tenderness return 10 months after lumpectomy: What does it mean?

Posted by glendafl @glendafl, Jul 7 1:02pm

Hello,
I had a stage 1 left breast only cancer. The tumor was 16 mm. I did not have chemo therapy but I did have 19 radiation treatments. My surgery was September 27th 2023. My radiation ended January 8th 2024.
I’ve been taking Letrozole since February this year. Now after all this time my L breast is sore and hurts when changing clothes, bras, bathing, etc. Sometimes the weight of the water from the shower hurts. It doesn’t matter which way I sleep. It feels heavy like it did after surgery with a hard thing in there. My oncologist examined me and said both breast are sore but she did not feel anything. My right breast is sore but doesn’t hurt much. Dr is moving my mammogram appointment up a month to be sure. So I will be having it in July but It was scheduled for Sept 06.
I also have very dry skin, everywhere. My vaginal area is so dry that the sides were inflamed and the skin looked like it had split like something scratched/cut me there. It was raw and swollen. I started using Replens over the counter moisturizer and that has helped.
I’m just wondering what this means with the pain in my breast? The Dr said it could be the Letrozole. Has anyone experienced these symptoms? Just worried. Such is life after a cancer diagnosis. lol. Just saying.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Yes, all of that. Hugs to you. Hang in there. That's all I am doing.

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@jilly615

I am praying your mammogram is a negative result.

As for the pain and swelling, I had 20 radiation treatments after a partial mastectomy. About 10 months later, I was having tenderness and terrible pain & aching in that breast, the ribs just below the breast and under the arm, as well as new reduced range of motion in that arm after almost a year of healing from radiation. CT scan & mammo were clear. My surgeon said I had radiation-induced fibrosis. It’s when muscles, tendons, ligaments & skin get damaged and hardens, basically creating scarred tissue as a result of radiation therapy. It causes range of motion issues, pain, tightness, and sometimes skin changes. We tried Meloxicam and it didn’t help much and I didn’t like more potential medications & their issues as well. I was on this site when someone mentioned ‘swell spots’. They are a form of compression padding that gently puts pressure on the fibrosis spot and begins to break it up so it isn’t pulling & tightening that area, which is what is causing the pain, etc. I found some on Amazon, but wasn’t sure which size I needed, so I found a nurse’s blog who suggested a home remedy. I tried that and it worked perfectly!!! I wore my standard compression bra from the early days after surgery (Prairie Wear brand is what I have, zippers in the front) every time I was home until the pain went away (now I wear it a couple nights a week) I put a folded up men’s athletic sock, a thick one, like 3-4 inches when it’s folded in it at the side of my breast where my tumor was removed. It doesn’t hurt at all, the sock flattens a bit. It’s just gentle constant pressure and it breaks up/stretches the area and relieves the pain. I have since found that a ‘knitted swim knocker’ works easier. It has thick stuffing than a regular knitted knocker & gives perfect pressure. I got mine from my nurse navigator, but their website is http://www.knittedknockers.org. If it turns out that is your issue, these saved my life!
I also use their regular knitted knockers everyday in my bras. They breathe, washable and have no weight to them like normal prosthetics. You can adjust the filling inside to fit you. Fabulous invention and all made by volunteers and they are free to order.

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Well I’ve gone back to wearing a compression bra every night. That does help, light pressure and support helps. I find myself holding my left breast around the house and sometimes away from home I hold on to the bra strap until the aching pain subsides. This is what I was doing after the surgery. I know something is not right. I dread that mammogram pain. I have started exercising at least 20 minutes every day hoping this will help in some way. Most days I get in about 45 minutes total. I try twice a day even if it’s only 10 minutes each.
My mammogram is July 26. Here we go again.
Glenda.

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@clh71

It is Lymphedema and I cannot remember the other word that was used. I have been trying to find someone with Lymphedema training all afternoon. Most Physical therapists do not have that training.

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After an ultrasound, MRI finally lymphedema was diagnosed.

Can your oncologist recommend one? Usually each cancer center has one. I had to drive an hour each way. Mine was excellent- also taught my husband how to do it at home.

You probably also need to find a bra fitter ( like a place for women who had mastectomies) . They can fit with compression bra and get a swell spot too. Insurance will cover these( should)

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@glendafl

Well I’ve gone back to wearing a compression bra every night. That does help, light pressure and support helps. I find myself holding my left breast around the house and sometimes away from home I hold on to the bra strap until the aching pain subsides. This is what I was doing after the surgery. I know something is not right. I dread that mammogram pain. I have started exercising at least 20 minutes every day hoping this will help in some way. Most days I get in about 45 minutes total. I try twice a day even if it’s only 10 minutes each.
My mammogram is July 26. Here we go again.
Glenda.

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Watch the heat too. Mine lymphedema person gave me exercise to do too.

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@celestebradham

Watch the heat too. Mine lymphedema person gave me exercise to do too.

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Thanks, I know my skin is itchy and dry. How do I find the exercises your lymphedema person gave you? I’ve been lightly massaging my surgery breast. It seems to help. My skin is so touchy and sensitive too. One day my face cream burns the next day it’s ok. It’s like all my senses nerve endings are inflamed through out my body. I take Letrozole in the mornings. I have to take my bra off in slow motion. I mean it. It’s not just the breast tissue that’s sore, but the skin also. The pressure helps. I wonder what this means??

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@glendafl

Thanks, I know my skin is itchy and dry. How do I find the exercises your lymphedema person gave you? I’ve been lightly massaging my surgery breast. It seems to help. My skin is so touchy and sensitive too. One day my face cream burns the next day it’s ok. It’s like all my senses nerve endings are inflamed through out my body. I take Letrozole in the mornings. I have to take my bra off in slow motion. I mean it. It’s not just the breast tissue that’s sore, but the skin also. The pressure helps. I wonder what this means??

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Have you seen a lymphedema person? Or been diagnosed with lymphedema? Mine taught me how to do manual draining - so I would be able to do it at home. She actually taught my husband which was very helpful for us to do it at home. I’ve seen some good ones video for manual drainage on you tube- MDAnderson has them in their sight( that’s where I go)
I’m sorry I don’t remember- I’m thinking you had radiation? I would see them to help with skin issues or your oncologist. They actually called me in a cream to help with healing.
As for the stretches they were to help keep my ROM( range of motion).
I also had a swell spot, a compression bra and sleeve that I was fitted for by a specialist- I had to find this on my own. Insurance usually covers these

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Yes. I had 19 radiation treatments, prone position for left breast. I have not seen a lymphatic doctor. I have not been diagnosed with lymphedema. My mama gram is July 26 for both breast. Dreading this greatly. I’m gonna see if I can find those exercises for lymphatic drainage. I’m been stepping up the exercises, walking, riding my bike, stretching and using treadmill to get in at least 10 minutes 2x a day. It seemed to help me feel better. Wearing a compression bra helps too. Thanks for sharing and advice.
Glenda.

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I, too, had pain and swelling in my breast after radiation. After seeing my breast surgeon it was diagnosed as lymphedema. It was recommended I do physical therapy which gave such relief. I have to wear a compression bra 24/7, but it is worth it. I also avoid salty foods as much as possible, exercise regularly, and try to keep as positive attitude as I can. Good luck.

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@glendafl

Yes. I had 19 radiation treatments, prone position for left breast. I have not seen a lymphatic doctor. I have not been diagnosed with lymphedema. My mama gram is July 26 for both breast. Dreading this greatly. I’m gonna see if I can find those exercises for lymphatic drainage. I’m been stepping up the exercises, walking, riding my bike, stretching and using treadmill to get in at least 10 minutes 2x a day. It seemed to help me feel better. Wearing a compression bra helps too. Thanks for sharing and advice.
Glenda.

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After surgery and radiation I had swelling and a solid feeling under my breast, around into my armpit and down my arm, range of motion wasn’t great. My oncologist referred me for PT assessment and Lymphedema was diagnosed. I started with daily lymphatic drainage exercises. The sequence of the exercises was emphasised, there are a number of good videos showing how you can do this. I also wear compression tank tops/bras the majority of the time. It all really helps.
Good luck with it all

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