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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: 4 days ago | Replies (425)Comment receiving replies
I've had the same fasculations for 3 years. They have really never completely stopped but have lessened. I had an MRI of the brain and and EMG of my legs because thats mainly where they are but I get them everywhere. Both tests normal. So to me there's nothing really to test. A brain MRI would of showed something abnormal if it was serious. And an EMG checks for serious illness like ALS. Somedays it makes me stress and get worried I just have to give it to GOD. I do exercise 4 days a week. Eat healthy and try to relax and reduce stress and anxiety but it's hard. I can accept it if its benign it just worries me if it something else. I just didn't follow up with neuro anymore when those tests were negative. Believe it or not my family doc said her working partner had the same thing and freaked out thinking it was ALS and had same I did, tests and both were negative. Its nice to know there are more of us out there that have the same issue. Im 42 now . May God Bless all of you and may he pour his love and mercy upon you to better days ahead. Have hope in the Lord.
Replies to "I've had the same fasculations for 3 years. They have really never completely stopped but have..."
I know it gets real frustrating not knowing what’s causing this. I had an EEG last week that was normal now the doctor wants me to see a movement specialist to get Botox in the muscles but I really don’t feel like getting these treatments if they don’t know what’s causing it. How do you feel about that?
Thank you for your post. I took have been experiencing twitching and other symptoms. After a negative EMG I was for sure that would ease my mind, however symptoms persisted and new symptoms arise, all typical of BFS. I have taken it as encouragement to strengthen my faith and I too give it to GOD when the anxiety is unbearable. Reading your post brought me a bit of light on this stressful morning full of twitches, and achy muscles that are fueling my anxiety. Thank you.
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Yes, it does get frustrating though when you don’t know what’s causing it I have a muscular neurologist appointment on Wednesday of this week and EMG scheduled. If I don’t get any answers, this will be my last appointment.