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Bladder Cancer Group: Introduce yourself and connect with others

Bladder Cancer | Last Active: 1 day ago | Replies (126)
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@archer72

Hi I’m Makena. 70 yo TA Grade 3 cancer survivor. Been 3 years since diagnosis and treatment with BCG ongoing. Just recently stopped BCG due to adverse effects. I’ve had one recurrence of small low grade tumor which was fulgrated. Biggest problem is recurrent uti and living in fear from one cystoscopy to the next. I never feel at ease.

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Replies to "Hi I’m Makena. 70 yo TA Grade 3 cancer survivor. Been 3 years since diagnosis and..."
Colleen Young, Connect Director | @colleenyoung | Jul 27 10:27am

Welcome, @archer72. The fear of recurrence is understandable. You're not alone in holding that fear sometimes top of mind and other times lurking in the background. I encourage you to start a new discussion about coping with the fear of bladder cancer recurrence.

Have you heard the term scanxiety?
- Scanxiety: How did you get through scanxiety https://connect.mayoclinic.org/discussion/scanxiety/

Makena, you mention persistent UTIs. How long ago did you stop BCG? Might that reduce the risk of UTIs? Will you start any other treatment?

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