Anyone else have CHEK2 gene mutation? And have had multiple cancers?

Colorado73, thank you for your kind thoughts. You have lost so many loved ones to cancer at such an early age. Awful. The only positive is that genetics is finally starting to become an effective treatment with the new editing techniques. I had to fight off the nasty effects of tamoxifen, but it can be done. There is always a psychological component to any physical problem. So, focus on living and decrease thinking about this evil gene expressing itself in the future. God bless you as well.

Looking for any insight into clinical trails for chek2 mutation resulting in undifferentiated cancer with tumors all over abdomen. Stage 4. Tumors are entwined and enmeshed with organs and can't be cut out. Being treated at MSK...they've done extensive DNA research and can't pinpoint where cancer started.

@kmitch75
I’m sorry to hear of your plight. You’re in my prayers.

I have the chek2 mutation as well. I found that out after being dx with triple positive breast cancer. I was told that I should have a colonoscopy every three years I think and keep an eye out for thyroid issues. I do the Signatara testing every three months because I cannot tolerate the AI’s. I understand your frustration, it’s like waiting for a bomb to explode. I am sure I got the mutation from my father as he had prostate, kidney and bladder cancer none of which metastasized all were primary cancers

I'm very sorry to hear your story. Definitely sounds familiar, unfortunately. My father had prostate cancer but beat it, then 25 yrs later was diagnosed with stage 3 brain cancer. Lived 3 1/2 years afterwards. But my mother's side has all kinds of cancer & have lost everyone on that side except a few cousins. So I guess I'm the mix between the two lol.
I just had a CT scan done this week, Dr was looking for masses due to a tumor marker coming back positive. But nothing was found except a cyst on my ovary. It's not grown since the last time. Anyway, keep your head up. I know it's hard. This too shall pass.
God bless & best wishes for you on your journey.

I'm truly sorry to hear this. You're in my prayers 🙏. God bless you

I know your feelings, I am on my 5th round of cancer
I have three different types, this time I have chronometer which 1 in a million people have. I have had 2 brain surgeries and am fighting it again. There is no cure for it after I had radiation on my head twice. Cancer sucks.

Sorry to hear about your multi-cancer battle. That ‘s rough. Do you have the CHEK2 mutation? Can you give more detail of your 3 primary cancers? I want to look up your rare cancer. Thank you.

The dam spell check it's chordoma cancer.

Thanks for the update. A rare cancer can add to the frustration. Good that you were able to be properly diagnosed so you can be properly treated. Clearly you’re a strong person. Praying that you beat all three cancers.