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Anyone else out there dealing with neuro stuff mostly on their own?

Brain & Nervous System | Last Active: Jul 30 4:24pm | Replies (52)
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@carniplant

I can definitely relate to you're situation. I have a frightening Neurological illness that has puzzled doctors here in Austin, TX. The doctors have given me lots of different medical tests and examinations, but they still haven't been able to find out what's wrong with me.

I believe that my only hope to beat this mystery, Neurological illness (& get 100% of my health back), is for me to go to The Mayo Clinic and try to get them to do a clinical trial for me.

If The Mayo Clinic is doing clinical trials, will you or someone please let me know?

Also, no matter how difficult it is for you to get treatment, please don't give up. Please keep fighting to get all of your health back, so that you'll live a normal, wonderful life again.

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Replies to "I can definitely relate to you're situation. I have a frightening Neurological illness that has puzzled..."
Colleen Young, Connect Director | @colleenyoung | Jul 19 5:08pm

@carniplant, did you know that Mayo Clinic has a database of the clinical trials it is currently conducting that you can search? See here: https://www.mayo.edu/research/clinical-trials

You can also call a coordinator to discuss available trials for which you may be eligible:
NON-CANCER CLINICAL STUDIES QUESTIONS
Phone: 800-664-4542 (toll-free)
Contact form https://www.mayo.edu/research/forms/clinical-trials

CANCER-RELATED CLINICAL STUDIES QUESTIONS
Phone: 855-776-0015 (toll-free)
Contact form https://www.mayo.edu/research/forms/cancer-clinical-trials

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sbtheplumber1 | @sbtheplumber1 | Jul 20 8:10am

Good luck with Mayo I contacted them and faxed all my tests to them. I was told to give them 4-6 weeks I’m glad they responded quicker but disappointed they reviewed everything that day and mailed a basic letter on Friday and I got it on Monday. Being a highly recommended facility and knowing I’ve been to 3 additional Surgeons after my failed back surgery. I was praying for at least some suggestions but no all I got was a denial letter. I called and they said if I had a doctor write them they would look at it again. Why not tell you from the get go you need a referral!

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