I'm so sorry about all that you are going through. This is a very long time to be a caregiver. I can relate to your story. My husband has only been cognitively impaired for 6 years or so but I'm already burned out.

Hubby wants me next to him at all times. I come home from errands (45 minutes at the most) to accusations of having an affair or making plans to leave. It's when I remember that he truly fears this is true that I take a breath and drop everything to reassure him. I know he's terrified of losing me and that breaks my heart.

I'm glad you can still end the day with a smile and a kiss. We do too. I'm hoping we can both find ways to get away and focus on self care before our health is affected.

Well meaning loved ones insist I get some help (like I don't know that) but until they've lived it they have no idea that it's not so simple.

I'm holding you and others in similar situations in my heart.