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STOP! Don't do this if you have osteoporosis

Osteoporosis & Bone Health | Last Active: Nov 12 11:04am | Replies (255)

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@isabelle7

@debbie1956

I've been trying to find where I saw that information about a greater chance of recovery from osteoporosis when it's steroid-induced. I'll keep looking and will share if I find it.

I'm sorry that you, too, have this condition. Did they ever tell you early on that steroids could cause bone issues and offer you meds? Which is something I've read over and over is what should be done. When a person is on over 7.5 mg of prednisone for 3 months. The first few months of high dose prednisone evidently is when the worse damage is done to the bones and then it slows from there.

I'd not heard of IVIG before. Is it helping you? And what do they give it for?

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Replies to "@debbie1956 I've been trying to find where I saw that information about a greater chance of..."

@isabelle7 , IVIG - intravenous immunoglobulin is given for a wide range of conditions. I was thinking that your husband's Giant Cell Arteritis may be be treated with it as many autoimmune conditions are. I have a very rare type of vasculitis. The IVIG has no side effects for me and has completely stopped effects of my condition. However, it is extremely expensive, so I'm not sure how it's prescribed in U.S.

When my neurologist first prescribed 50 mg dose of Prednisone 5 years ago, he told me it could "blow my hip out" but didn't mention OP. At that time I'd just recovered from autoimmune profound sensori neural hearing loss so would have taken cyanide to recover my hearing, which the Prednisone achieved. I was told to remain on it and eventually taper down to 20 mg. I wasn't offered a DEXA at age 62, but asked my GP for one which revealed OP with spine -2.8 (learned this 3 years later) after 3 months on Prednisone. I asked immediately if the Prednisone had caused this and GP responded "not that fast"!. I know now she was completely wrong and knew very little! I'd hardly heard of OP back then and was more preoccupied with my autoimmune condition. My GP said my fracture risk was low. I didn't ask for numbers or a copy of DEXA. I stopped the Prednisone around 3 months due to side effects, but experienced further hearing losses a few months later, so continued the high dose Prednisone for close to a year combined with another immunosuppressant until esophageal damage became unbearable and went on IVIG. I feel for your husband as I know how hard it is to come off of Prednisone. I believe I once read OP caused by Prednisone might be reversed if treated immediately but I've been off Prednisone for 3 years. I will investigate this topic again.

Thank you speaking about Prednisone - it was prescribed to me because of back and pain. I found it me awful foggy and I could not remember things. Asked my Dr to get me off it. Best thing I did after reading about the bone issue. Doctored should go over thing before handing out PILLS!