← Return to Finally relief from peripheral foot neuropathy! (my story)

Discussion

Finally relief from peripheral foot neuropathy! (my story)

Neuropathy | Last Active: Sep 20 5:57am | Replies (54)

Comment receiving replies
@julbpat

I have idiopathic SFN. No numbness, but lots of burning pain in my toes, plus pain and tenderness pretty much everywhere. Two years ago I switched from pregabalin (Lyrica) to carbamazepine (Tegretol), which I had been on previously for seizures. The relief was immediate. However I immediately started gaining weight - 10 pounds in the first two months, then it continued. I’ll admit I gave up on weight loss and just ate whatever I wanted, once I realized the Tegretol was making weight loss very discouraging.
I switched to lamotrigine (Lamictal) about 2 1/2 months ago. Ouch!!! The burning toes returned within 48 hours of starting to wean off Tergretol. This has been a rough period, with lots of neuropathy pain.
Yesterday I started another drug, oxcarbazepine (Trileptac). It is similar to Tegretol, but hopefully without weight gain. Even at a low starting dose, I felt immediate relief from the burning pain. Yesterday after just two doses of 150mg, I urinated so much that I felt lighter. I was also very sleepy all day, but I can take that short term.

Jump to this post


Replies to "I have idiopathic SFN. No numbness, but lots of burning pain in my toes, plus pain..."

Yay for you.
I too went through several medications and so many types of external modes to relieve the awful burning in my feet. I saw a new neurologist who started Nortripyline. I started at 10mg daily and progressed to 40mg daily. I am finally able to sleep through the night with no burning. My feet do feel kinda heavy and I do feel little burning at the end of the day.
This has been a game changer for me.
Maybe this medication will help someone else.