@zenalucy @mimsymode @samcal9977zz @bestgrammy @carolinlv @melissawolfe1981 @akelley @artemis1886 @sommerreign @lowrymal50 @ke01789 @ ikrinbauer. @taosmary I thought I’d give everyone this info at the same time. Most of you are upset with your doctors (or lack thereof), are tired of being brushed off as anxious, and just, generally, being p….off. So I have some resources for you.
These sites have information on autoimmune diseases and the doctors who specialize in them.
GARD. The Genetic and Rare Disease organization. https://rarediseases.info.nih.gov/
NORD the National Organization for Rare Diseases. https://rarediseases.org/
Hospitals:
Comprehensive Medical Centers: in or near larger cities, have physicians in all health categories
University or teaching hospitals: include research facilities; will probably see residents and interns first, but the more experienced MD’s are supervising
The Mayo Clinic Health System: available in 3 mid-west states. . https://www.mayoclinichealthsystem.org/?
The Mayo Clinic Care Network: https://mayoclinic.org/about-mayo-clinic/care-network/network-members around the country and international
website if you wish to try to get an appointment: http://mayocl.in/1mtmR63

But, please, I ask you, use your words more carefully. When new members come, the negative words about doctors and hospitals, will really put them off and they will feel that there is no hope for them. All of you have such great tips and information—LET’S SHARE IT!!