That is so frustrating. After I had d finished all my treatment (Stage IIIB) my first question was “How will you follow up to make sure the cancer doesn’t come back?” The response at that time was we wait for symptoms, which as a nurse, I thought was inadequate. Had the NP not continued to follow the CA 27.29 and waited until I was symptomatic,I would be a very sick woman right now! My hope is that you can find some resolution.
It is very unsettling. My heart goes out to you.