Matthew B. Jensen videos

Welcome @cats0cats2, I see you also have another discussion you posted June 20 but no one has responded - Anyone Thoracic radiculopathy and Facial nerve palsy: https://connect.mayoclinic.org/discussion/anyone-thoracic-radiculopathy-and-facial-nerve-palsy/. I'm hoping others that may have similar symptoms as yours may see this and respond with what has helped them. I know it's frustrating not to have a diagnosis and a treatment plan that provides some level of relief. It sounds like you have seen various doctors with no answers. The only thing I can say is that there really is no cure for neuropathy with a few exceptions where it's caused by nerve compression that can be addressed by surgery (in my non medical opinion). The two best sites I know of for learning more about neuropathy and possible treatments are:

-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

Have you considered seeking help at a teaching hospital or major health facility like Mayo Clinic?

My treatment and tests etc are centered around Providence Hospital. I'm not sure how many of their neurologists have seen me or seen my test results. But I know for sure I have seen 2 Neurologists while in the hospital and 2 in office visits to Neurologists. I was somewhat of a curiosity at my worst. They all wanted to put my hands, arms feet and legs through the moves and pricks to check for strength and sensation. Never had a problem with my limbs other than a slight bit of neuropathy in two different fingers on each hand. I would love to find a correct diagnosis and find a specialist who can tell me or my Dr's what treatment will work for me. I asked my Dr to reach out.

Google Dr Anne Oaklander she is a research neurologist since before 2015. Dr Oaklander has several YouTube videos on neuropathy from guest speaker to lectures.

My new neurologist started me on Nortriptyline. I've been on it for a month and my burning and pain in my feet is very much better. I still minimal pain after wearing shoes more than 6 hours and also some pain at night.

I'm not seeing any good information concerning torso neuropathy and Bells"s Palsy, so need to look elsewhere.

Tengo neuropatía periférica que impide los movimientos normales de mis pies y tengo insensibilidad casi completa en los pies y algo menos en la pierna hasta la. rodilla No las manejo ; afecta mi equilibrio y tengo que andar con un trípode. Y a la calle salir con un andador porque me siento muy insegura por la falta de equilibrios y nunca nadie me pudo decir cuál es la causa. Este problema se manifestó concretamente hacer algo más de 12 años. Pero no tengo el más mínimo dolor. Hace casi 20 años recibí rayos y tomé 4 años y medio tamoxifeno . Convivo con el problema y no creo que a esta altura alguien pueda decirme concretamente cuál es la causa ni darle solución. Pero no me desvela el problema , y agradezco que no tengo dolor. Y eso ya es un lujo.

So many afflictions like ours seem to go untreated. Even with all the medical advances we still suffer with the various neuropathy. Neuroscience is hard I'm sure! Pain is debilitating, as is mobility! Will we ever know what is causing this?