← Return to Meningioma: Anyone else? I'm frightened

Discussion

Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 4 hours ago | Replies (202)

Comment receiving replies
@geedle12

Thanks for your reply. If you don't mind me asking how big was it and where was it located, was it calcified. I read they don't remove them until they are 3 cm or over and causing a problem. Where was it located? Where did you have the surgery? I would like to avoid surgery if possible.

Jump to this post


Replies to "Thanks for your reply. If you don't mind me asking how big was it and where..."

geedle12: My meningioma was a "sphenoid wing" meningioma, 2.7 centimeters, located 1/16th if an inch from my optic nerve. The meningioma was not calcified. It was benign. I was advised by a radiation oncologist that if one's meningioma is problematic and needs to be dealt with that removal is always the first choice. I was told by 3 doctors that no surgeon would feel comfortable operating b/c the meningioma was in a difficult location, too dangerous to remove because of my optic nerve and location of arteries, etc. So I thought radiation was my only choice. But a neurosurgeon at the University of Calif. in San Francisco said, "No problem. I do one or two a week in that location." (insert smily face emoji) My husband calls him the rock star of neurosurgery. By the way, the radiation oncologist, the person who would have planned the radiation protocol had I gone that route, said you can't usually have that procedure done if the growth was more than 3 centimeters.