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Squamous Cell Vulvar Cancer: Who out there has this cancer?

Gynecologic Cancers | Last Active: Dec 15 4:51pm | Replies (282)
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@bijou68

Hi Brandy: First: ask questions until you are satisfied. It is your right as a patient, and it is your body and you have medical assurance. Is the Dr. you are talking about an oncologist?
I think the Imiquimod will kick in. You only had a few doses so far and i think the effects are cumulative. I think 3 times a week is a good regimen for 2 months. It is what i did at the last manifestation a year ago. The first manifestations 3 years ago was really challenging because i was stold to take it every day and i was a mess with itching endlessly and burning endlessly which made my oncologist changed the protocol to 3 times a week but longer. Last year she gave me a medication to lessen the effects of Imiquimod. I can look at the name of it on my kaiser site. I don't know anything about Clobetasol. What is it for? I have a visual appointment with my gynecologist august 1. Of course, I am not looking forward to it. All i know is that my oncologist 3 years ago proposed an excision of my clitoris but found out Imiquimod was another option. After that with so far a total of 10 different spots in all areas of the vulva, she said that it would be too many spots to excise. So honestly i try to forget i have this strange condition but keep on top of the treatments, the check up appointments etc... If on August the gynecologist who caught all 10 spots, spots again some more manifestation then i will be at a loss. I am keeping you in my prayers and please stay in touch. Brigitte

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Replies to "Hi Brandy: First: ask questions until you are satisfied. It is your right as a patient,..."
brandysparks | @brandysparks | Jul 29 4:42am

@bijou68 - Hi! Clobetasol is to manage the Lichen Sclerosus that can (& has, in my several cases) lead to Vulvar Intraepithelial Neoplasia (VIN), which is a precancerous condition that can lead to the Squamous Cell Vulvar Cancer.

I am still applying the Imiquimod cream 3x/wk, and the Clobetasol on the other days to hopefully manage/abate any further VIN developments. Though the way it has gone this year, "out of the blue" after 40+ years of watching my skin condition, I am told it will need to be checked every 6 months for the rest of my life. That is fine, if that is what it takes.

I still have no burning from the Imiquimod, and my oncologist says that is OK - with all the caution I'd received about it burning, it worries me that it is really being effective. But I will find out when I return for the 2-month check w/the oncologist in early Sept.

I am not suggesting this, but having had the direction from the oncologist to have the laser ablation (that was the 1st surgical procedure I've had for this, it was in Feb. this year), I wonder if that is an option in your circumstance, rather than the excision being the only option for each spot?

Again, not suggesting it, but maybe worth inquiring about? And can you get to a gynecological oncologist for further insight if you haven't yet?

Best wishes, and let me know.

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