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Hi, I have Fibromyalgia, migraines, and Myofacial muscle disorder too. I'm told some reasons I have theses hereditary and some reasons are that I've had numerous a number of sporting accidents I've tried many of the previously mentioned medications, Lyrica, Cymbalta, Gabapentan, Topimax, some reduce the pain, all have various side effects most intolerable for me.
My #1and/2things that absolutely help me are the myofacial manual muscle release and all the injections. Botox injection for headaches/neck, lidocaine/cordisone injection mixture for my S/I joint when it acts up, into my shoulder joint, and for neck/back trigger points. The shoulder was previously broken/torn (+5 surgeries), hip in another accident. The only injection that I'm sedated for is my hip:S/I joint and that can still hurt enough to wake me right through the sedative.
I think each each drug and procedure is very individual. I wish I could stop taking all the various medications and have no side effects and have them work.
I do have a question for everyone who has taken any or all of the previously mentioned drugs. Has anyone experienced the loss of senses. I have had sudden partial hearing loss in my left ear. Went to bed with normal hearing and woke up with about 1/2 gone. I don't smell well, taste well or see well either. All of this has happened over the last 2 years since I started this medical roller coaster. I have had many CTs, MRIs, contrast dye and other painful things.
You all inspire me,
Jen
Replies to "Hi, I have Fibromyalgia, migraines, and Myofacial muscle disorder too. I'm told some reasons I have..."
Friends, thanks for all your comments. You inspire me too.
Something I've taken from this forum is that I plan to discuss discontinuing Gabapentin with my Physician. The side effects are disagreeable, and the medication isn't helping me enough to continue tolerating them. I am happy for anyone who IS being helped by it.
I've heard from some sources that Gabapentin should not be abruptly discontinued, that tapering down is necessary. Is there anyone who could share their experience of discontinuing Gabapentin? I don't want to cause myself more unpleasantness. Any feedback will be appreciated.
Thanks, Susan
@sistergoldenhair, I took Gabapentin for about 4 months. Started a 300 mg and increased to 900 mg daily over a 3 week period. I started feeling foggy, forgetful and drowsey. I didn't feel any relief from the pain. I chose to quit the medication. So after doing some research I started to tapper down and stopped the medication within two weeks. I would discuss with your doctor about stopping meds as everyones medical history is different. It may take you longer.
Thanks, 900 mg is the dosage I take. I'll see what the Doctor has to say.
Reply to Nursegigi: Hi my pain mgmt recommended gabapentin a few years back 2015 for electric type shooting pains in my legs. I think I remember gaining weight on this med, and after a few months I noticed I no longer had the shooting pains so cut down gradually to get off of it. My legs are hurting again now and I wonder if I should reconsider renewal. Seems I had other side effects as well. But do taper off gradually if you choose to get off gabapentin.
@sistergoldenhair I was on Gabapentin two different times. Each time I was titrated on and off.I had memory loss and was very unstable on my feet when taking it. I didn't ask why but my doctors told me it was necessary and I could feel worse. Like you, I didn't want any more unpleasantness.
Jen aka @sandytoes
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Good question, Jen. My husband complains that I have the TV on too loud. I have my annual visit with the Eye Dr. coming up, so we'll see about my vision. My eyes 'ache'. Sounds strange, but that's the only way i can describe it.