Feeding tube patients: What's your experience?

Posted by jwkelly72 @jwkelly72, Jul 23, 2023

I have a G tube in my stomach and am curious about what you tube feed, problems incurred, everything that has worked.. My tube is a permanent part of me and been keeping me alive since mid October last year. It is no different to me than my mouth, throat, esophagus except it doesn't get cancer. It is a Godsend.

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We switched brands one last time to Vital One peptides, which is supposed to be more digestible, but even that wasn't tolerated. Hubby subsequently had his j-tube removed and is now on TPN (IV nutrition)....it is easier on him because it goes right into his bloodstream but it, too, has caused problems. With not using his digestive system, his gallbladder filled with sludge (more likely when someone who is on IV nutrition). On the upside, vomiting is almost totally gone but he continues to have issues with nausea—emanating from the abdomen. The j-tube was removed more than one month ago and he still leaks bile from time to time—I was under the impression that it closes within hours. His "recovery" is and has been horrible.

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I have had a g tube for 2 weeks but since starting chemo I get nausea before I get enough nourishment into myself, even with a pump unless I keep the pump running constantly or set the ml per hour high then the nausea is a problem.
Since my esophagus is blocked nausea isn’t able to be relieved - I cannot vomit. I take an anti nausea but there’s nothing for immediate relief. Should I ask my doctor for something like phenergin? I’ve had that in suppository years ago but it burned bad as I recall. Any ideas? Still losing weight as well 115 now ( 67 yr old male 5’6”) 135 my precancer weight

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You might try prochlorperazine—it's available as a suppository. Good luck.

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My husband started on Jevity 1.5 but now he’s on Boost High Calorie which runs about530 calories and 22 grams of protein.

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@mmiles04

My husband started on Jevity 1.5 but now he’s on Boost High Calorie which runs about530 calories and 22 grams of protein.

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Welcome, @mmiles04. How is your husband doing? Is his feeding tube permanent? How are YOU doing?

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