@bijou68 - I have 2 lesions again after laser ablation in Feb. and excision of a different spot, slightly deeper, in Apr.
2 Qs for now:
1 - I'm using Imiquimod on the 2 spots, but it sure seems it's not (& can't be, by nature) a very targeted application. PLUS, I'm to use the Clobetasol for the rest of this small "inner vulva" (my words) area. How does this all stay targeted when, basically, it is nor more than a 1-inch area? This discovery was just 10+ days ago, so I've just used the Imiquimod 4x (spsd to use it 3x/week for 2 months). Isn't it supposed to burn? I've not felt any burning yet; of course, that is 'nice', but does it mean it's not doing the job?
If this doesn't work, I have to have these 2 areas excised, and it will compromise my urethra opening, which will affect urine flow/direction. And, it will also be very painful until it heals, but I've endured that before: as long as it removes these things, it must be done.
2 - How do you work on 'lessening the intense scratching and burning'?
Thank you so much for any insights, experience, advice you can provide. I can ask (& have asked) my Dr and her nurse, but after a few Qs, I don't want to 'wear out my welcome' if you know what I mean.
Best...
Hi Brandy: First: ask questions until you are satisfied. It is your right as a patient, and it is your body and you have medical assurance. Is the Dr. you are talking about an oncologist?
I think the Imiquimod will kick in. You only had a few doses so far and i think the effects are cumulative. I think 3 times a week is a good regimen for 2 months. It is what i did at the last manifestation a year ago. The first manifestations 3 years ago was really challenging because i was stold to take it every day and i was a mess with itching endlessly and burning endlessly which made my oncologist changed the protocol to 3 times a week but longer. Last year she gave me a medication to lessen the effects of Imiquimod. I can look at the name of it on my kaiser site. I don't know anything about Clobetasol. What is it for? I have a visual appointment with my gynecologist august 1. Of course, I am not looking forward to it. All i know is that my oncologist 3 years ago proposed an excision of my clitoris but found out Imiquimod was another option. After that with so far a total of 10 different spots in all areas of the vulva, she said that it would be too many spots to excise. So honestly i try to forget i have this strange condition but keep on top of the treatments, the check up appointments etc... If on August the gynecologist who caught all 10 spots, spots again some more manifestation then i will be at a loss. I am keeping you in my prayers and please stay in touch. Brigitte