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@debbie1956

@isabelle7 Prednisone was also a huge contributor to my osteoporosis with recent DEXA T score at -3.5 in spine. Your comment that steroid-induced osteoporosis has a greater chance of recovery caught my eye. Could you share where you read this? I empathise with your husband's experience with the nasty Prednisone. I was on high dose 50 mg for close to a year for autoimmune condition as well. So grateful to be off of it and receive IVIG now instead.

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Replies to "@isabelle7 Prednisone was also a huge contributor to my osteoporosis with recent DEXA T score at..."

@debbie1956

I've been trying to find where I saw that information about a greater chance of recovery from osteoporosis when it's steroid-induced. I'll keep looking and will share if I find it.

I'm sorry that you, too, have this condition. Did they ever tell you early on that steroids could cause bone issues and offer you meds? Which is something I've read over and over is what should be done. When a person is on over 7.5 mg of prednisone for 3 months. The first few months of high dose prednisone evidently is when the worse damage is done to the bones and then it slows from there.

I'd not heard of IVIG before. Is it helping you? And what do they give it for?