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Once on Tymlos, how often are you tested for calcium, vitamin d etc?
Osteoporosis & Bone Health | Last Active: Mar 5 3:17pm | Replies (17)Comment receiving replies
bluebonnet242,
sorry, I just realized that I hadn't answered your question fully.
I've had five PTH intact serum tests since July23. One was before he prescribed and one before I began treatment in February. He runs these tests at close to three months and then at nine months:
CTX
P1NP
BSAP
CMP comprehensive metabolic panel
CBC
PTH intact
and Lipid panel
Vitamin D
The gentleman is thorough. Usually my labs and appointments are a little off because we both travel in different directions. When I come in he has already seen everything. His practice is osteoporosis only.
I don't know how many of these labs are necessary. He is interested in statistics doesn't compare CTX to P1NP and doesn't use them for prescribing direction.
Good thinking to get the d levels checked. PTH makes very good use of D and can leave you low. My D didn't drop until a year in. You might ask for a CMP for the renal information. See if the PCP will order a PTH intact. You have to give them something to say no to.
I'm afraid that you may be experiencing practice "norms."
Great drug. Wishing you luck.
Replies to "bluebonnet242, sorry, I just realized that I hadn't answered your question fully. I've had five PTH..."
@gently Hi friends, I’m trying to understand how to find the right specialist for osteoporosis. Do most of you see an endocrinologist, or is there another type of doctor who focuses more on bone health?
My endocrinologist manages both my thyroid and osteoporosis, but she doesn’t order bone turnover markers. She only sends me for a yearly DEXA scan and routine labs like thyroid, calcium, and vitamin D. I’m not sure if this is standard care or if I should look for someone who pays closer attention to bone markers, especially while on tymlos treatment.
I am with her for almost 10 years. My bone density is getting worse that she asked me to take Tymlos. I am tolerated its side effects but the internal dry heat still bad at night. She said it's unrelated and advise me to see GYN or PCP
Thanks for your sharing and help. We're learning together
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Wow, I can’t believe the difference in protocols. My new endo is a Mayo endo specializing in osteoporosis. I was surprised there is no follow up until I’m finished with Tymlos. I’m going to contact them through the portal just to be clear on testing. They have been good about getting back to me.
My previous doctor had done testing prior to prescribing Tymlos. My PCP is good about ordering the tests I want but doesn’t know much about osteoporosis so thanks for the lists of tests.
You sound like you have a great doctor! Do you mind sharing where he’s located?