Forteo: What is your Experience?

Posted by leeosteo @leeosteo, May 18, 2023

I'm looking for anyone's experience with Forteo. What were your side effects? Were they tolerable? Did you see good gain in bone density? What med did you follow up with to lock in gains?

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I had access with no Medicare part D through GoodRx 700+$ per pen. Now the price is 1,220$ per pen. I have a passport, and will be resuming Forteo at 100$ per pen.

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@inam

Yes I did. Thank you! Husband makes too much $. It seems like if you aren't in poverty you can't get Rx help. Very sad!

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When on Forteo 3 years ago, my Dr. really pushed at me to apply for assistance. I didn't believe I would qualify. The clinic kept pushing. I finally filled out the form. I was 100% covered. The top end for income was above 170K (I don't make that much). I don't know anything about how that works today, but I tell everyone to talk with the clinic.

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@lkel

When on Forteo 3 years ago, my Dr. really pushed at me to apply for assistance. I didn't believe I would qualify. The clinic kept pushing. I finally filled out the form. I was 100% covered. The top end for income was above 170K (I don't make that much). I don't know anything about how that works today, but I tell everyone to talk with the clinic.

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Thank you! I am going to try again then and see what happens. Did you apply with EliLilly to get assistance? Or somewhere else?

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@inam

Thank you! I am going to try again then and see what happens. Did you apply with EliLilly to get assistance? Or somewhere else?

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It was Lily Cares but it was the clinic that submitted it. I go to one of the large clinics that has been buying up the smaller clinics. I believe there was one person locally at the clinic that works in financial assistance area. She called multiple times until I applied.

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I was on Forteo for 12 months when I was in my 40s. That was about 20 years ago. It was fairly new at that time, as I recall, and I was very worried about taking it because of the black box warning at that time. I do not remember having any side effect. My bone density increased by 8% and that was awesome. The only issue was that my PCP, who prescribed the drug, did not put me on a maintenance drug after completing Forteo (a bisphosphonate drug) to maintain bone density, so my progress reversed and became worse. I didn't know any better, so I had to start all over again. I was on Atelvia for a while. Then Prolia, now Tymlos. I've tried Fosamax without success, as I could not tolerate it. I wasn't able to take any HRT post TAH because of my family history of breast cancer.

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Also would like to know about forte and side effects

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