Forteo: What is your Experience?

I had access with no Medicare part D through GoodRx 700+$ per pen. Now the price is 1,220$ per pen. I have a passport, and will be resuming Forteo at 100$ per pen.

When on Forteo 3 years ago, my Dr. really pushed at me to apply for assistance. I didn't believe I would qualify. The clinic kept pushing. I finally filled out the form. I was 100% covered. The top end for income was above 170K (I don't make that much). I don't know anything about how that works today, but I tell everyone to talk with the clinic.

Thank you! I am going to try again then and see what happens. Did you apply with EliLilly to get assistance? Or somewhere else?

Thank You So Much!!! I will definitely check into this out, as well as the helpful suggestions from others!

It was Lily Cares but it was the clinic that submitted it. I go to one of the large clinics that has been buying up the smaller clinics. I believe there was one person locally at the clinic that works in financial assistance area. She called multiple times until I applied.

I was on Forteo for 12 months when I was in my 40s. That was about 20 years ago. It was fairly new at that time, as I recall, and I was very worried about taking it because of the black box warning at that time. I do not remember having any side effect. My bone density increased by 8% and that was awesome. The only issue was that my PCP, who prescribed the drug, did not put me on a maintenance drug after completing Forteo (a bisphosphonate drug) to maintain bone density, so my progress reversed and became worse. I didn't know any better, so I had to start all over again. I was on Atelvia for a while. Then Prolia, now Tymlos. I've tried Fosamax without success, as I could not tolerate it. I wasn't able to take any HRT post TAH because of my family history of breast cancer.

Also would like to know about forte and side effects

Yes, significant hair loss in the past 12 months. It is a parathyroid hormone? so it seems reasonable this would be a side effect.

All the people who prescribe but have never taken Forteo will tell you that hair loss is not a side effect. Hair loss is a common complaint from people who have taken Forteo. Hair loss wasn't signaled in clinical trials. It possibly because nutritional values were also controlled.
Forteo is very good at depleting vitamin D by putting it to good use; low vitamin D can cause hair loss.
Some have reported that the hair recovers after two years of Forteo. Others have reported that the hair dosen't recover.
I haven't experienced hair loss. I have tripled D3 intake to keep a constant serum level.
Hyperparathryoidism does cause hair loss, I think it's Forteo causing you hair loss.

I was on Forteo for 6 months. I had no side effects except for injection site reaction, however, because my 24 hour urine for calcium was elevated prior to taking it, it just continued to get higher and higher and would get kidney stones if I didn't stop it. 3 months into taking Forteo, my P1NP went up to 250 from 68! It's too bad I had to get off this drug. I followed up with an infusion of Reclast and of course I experienced flu like symptoms but was relieved when taking Tylenol every 6 hours for 36 hours. Took a few days to be back to myself. Just started taking transdermal bioidentical hrt and progesterone for one week and will be going for bloodwork in 6 weeks to see my estradiol level since loss of estrogen was my main cause of osteoporosis and secondary cause is having hypercalcuria. My 2nd endocrinologist prescribed a low dose of chlorthalidone back in December and I have follow up bloodwork including my CTX. I also consult with Dr. Keith McCormick, and he said by taking transdermal hrt, it will help my CTX as well as my hypercalcuria and that I wouldn't need to be on chlorthalidone. He states this fact in his Great Bones book about the calcium flooding in the blood and how the body regulates the level and passes the excess calcium through kidneys and excess passes out in urine. He states this is all due to loss of estrogen in post menopausal women. When I read that paragraph, I said this is me! Only time will tell when I have various bloodwork and urine tests when I go in early April which is 6 months after my Reclast infusion.