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Anyone had cancer return while taking hormone therapy meds?
Breast Cancer | Last Active: 23 hours ago | Replies (243)Comment receiving replies
@hikerlou I am 10 years out from a nasty grade 3 cancer with LVI, but no chemo according to the Oncotype. After my 5 years of letrozole my oncologist no longer sees me even though risk goes up with hormonal cancers. My oncologist does not do the cancer marker blood tests and Signatera is used only after stage 4 is diagnosed.
With 7 spinal osteoporotic fractures, cervical and lumbar stenosis, scoliosis, and osteoarthritis, of course I have pain so how am I supposed to tell if cancer has spread. Some of mine was lobular which is hard to image. I have no breasts to scan.
Replies to "@hikerlou I am 10 years out from a nasty grade 3 cancer with LVI, but no..."
Can you make an appointment with your oncologist to discuss your current situation and ask about the next steps, follow-up testing etc? I found that we really have to be proactive and ask questions to get the care we need.
Have you considered a full body MRI? I know they are expensive but absurd more surveillance isn't ordered for us as early detection is all we have!! The Signatera test is not as expensive and if you ask your oncologist would they not order? xo
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I’m with ya! Dana Farber does not really advocate ctDNA liquid biopsy or full body MRI but this 5 yr mark seems to be critical and a time when we need enhanced surveillance as early detection is all we have. Perhaps ask your onco to write approval for the Natera (sp?) blood test to compare to tumor?? I too have lobular and very dense breasts!