1. < Colorectal Cancer

Anyone else with peritoneal mesothelioma here?

Posted by msfawn @msfawn, Nov 20, 2022

I hear my diagnosis is literally one in a million. Weird to be 43 and have been totally fit & healthy and never really have a doctor then bam, world up side down, loss of everything I value in life and know so few souls experiencing this. I am connected to MARF, just wondering if there are any fellow patients at Mayo who can relate.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

sherrygil | @sherrygil | Jul 17 2:29pm
In reply to @colleenyoung "Hi @sherrygil, I'm tagging @misty13 @msfawn @myarmyherohusband to make sure they saw your posts and will..." + (show)
@colleenyoung

Hi @sherrygil, I'm tagging @misty13 @msfawn @myarmyherohusband to make sure they saw your posts and will join me in welcoming you to the group.

I'm glad that HIPEC surgery in 2019 and again in 2021 has stablized the peritoneal mesothelioma.

How are you doing now? What advice would you offer someone newly diagnosed with peritoneal mesothelioma?

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Thank you so much for welcoming me! Im NED (no evidence of disease) as of right now thankfully. I would suggest to find a doctor who has expertise in meso research right away. I am a patient at Mayo, but I also go to M.D. Anderson in Houston. I do scans every 3 months between the Mayo and M.D. Anderson. I also am in palliative care. It can feel pretty lonely going through all of this, and was hoping to reach others who are going through this and can understand the constant fear. Please feel free to ask me any questions you might have!

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stutzmanle | @stutzmanle | Dec 4 1:57pm

I’m 53 male and was diagnosed two months ago. I am being treated at Mayo, will receive my 3rd treatment of chemo next Monday.

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Moderator
Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @stutzmanle "I’m 53 male and was diagnosed two months ago. I am being treated at Mayo, will..." + (show)
@stutzmanle

I’m 53 male and was diagnosed two months ago. I am being treated at Mayo, will receive my 3rd treatment of chemo next Monday.

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@stutzmanle, much too young. I'm glad that you're at Mayo Clinic. How did your third chemo treatment go? What protocol are you on?

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