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Neuroendocrine cells in Breast and Lungs DIPNECH

Neuroendocrine Tumors (NETs) | Last Active: Sep 16 11:26pm | Replies (35)
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@lcbrazen100

I was diagnosed with NET primary in Left Breast two years ago. I had lumpectomy and 20 radiation treatments. Genetic testing showed that Chemo was 50/50 so they decided not to do any. I have been taking Anastrozole since then and told to continue for 5 years, maybe 10. I had a PET done at dx but no one has suggested another. I now have itch paths on that breast and some pain in back right side which I have mentioned to Dr but nothing to do. Hoping for the best. No one acts like this is any different than treating regular BC. I have moved to another state and have all new doctors. Miss my old one .

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Replies to "I was diagnosed with NET primary in Left Breast two years ago. I had lumpectomy and..."
Miriam, Volunteer Mentor | @mir123 | Jul 17 10:06am

I also have a NET in left breast, with similar treatment to yours. It was hard to get a diagnosis. I had 4 pathology reports with 3 different opinions--my oncologist and I have both decided to go with Mayo's opinion. It is very frustrating, because as you say, treated as "ordinary" but there are very few studies or outcomes. I can really relate to where you are at with this rare cancer--and wishing the best for both of us!

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