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Bird picking at food after Whipple surgery and Creon
Pancreatic Cancer | Last Active: Jul 28 10:02pm | Replies (26)Comment receiving replies
That's great!! Getting through Whipple is hard and you've done it, good for you!! Modified Whipple is great as well, that's what I had and I eat normally now with the help of Creon, and a daily pantoprazole. My stomach was hugely puffed up after surgery, it has since gone down to normal. If it's cancerous then of course they'll give you chemo, pancreatic is so darn aggressive you'll want to get rid of any lingering cells. I'm in Canada and the protocol up here is Folfirinox. It was tough on me (diarrhea and exhaustion) for the first few cycles, then my oncologist reduced the concentration and for the last few cycles I've had almost no side effects at all.
Best of luck on your recovery!
Replies to "That's great!! Getting through Whipple is hard and you've done it, good for you!! Modified Whipple..."
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Best wishes to you and everyone who has gone through this.
My understanding is that pan can in the early stages is often a benign growth. Read where one guy was confirmed the tumor was benign and when it was removed it was mostly malignant. Really difficult to do but when caught early enough before the tumor develops into cancer and the Whipple or modified Whipple surgery is done then pan can can be stopped. My health is not good and I will not qualify for trials and it seems that depending on how far the pan can has developed the Chemo has different levels of effectiveness on the pan can cells that are left and any new tumors that occur. The best hope is that early Whipple surgery will get all of the benign or even when just a few of the tumor cells have turned to pan can. With my doctors information that my tumor was large it seems probable that I do still have a number of pan can cells in me. I would also guess that the earlier I am strong enough for Chemo the more effective chemo will be.
That is my game plan. The Whipple surgery as fast as possible and chemo as soon as I am strong enough. After that if all is good and clear sailing then not much more will be needed. If the chemo has little or no effect on the pan can left inside me and more tumors occur then I am leaning with hospice.
Latest word is that the surgeon may keep me in the hospital until my INR (blood thinning) is in range. That will take another 5-7 days so I really hope not. Chances are he will see the amount of time this will take in the days that follow and get me out of here by this weekend. I am a fall risk and in what I call bed and chair jail when in the hospital. I have an alarm set up to go off if I get up. My activity is very low and I will do much better if I can get home to manage my medications and increase my activity level. This hospital stay is just slowing my recovery. Not much I can do about this though. I was feeling really bad yesterday and was grumpy with him. I have not seen him today yet. Just the one associate.
I hope nothing but good things to you and everyone else out there.