My update…went to see my Primary this week. Before I went to see him I wrote down all the symptoms I’m having and my concerns. I wrote down certain labs that worried me. I had all my ducks in a row.
Went in there and it started off good. I started updating him on what the specialist were suggesting and that the RA Dr had put me on hydroxychloroquine (Plaquenil) to see if that would help me. I had been on it for almost 3 months with no help. I had gained weight extremely fast and am severely bloated after eating to the point that I don’t eat but one meal a day because I stay so bloated that I feel miserable and full. Plus it made my hair loss worse. Needless to say I stopped taking it a few days ago.
Anyway my primary doctor cut me off (so I never finished talking) told me that he thought it was all nerve damage from chemo and radiation (2014). From that point on any time I tried to bring up a concern it was the same answer. While some stuff could be from that not all is. But anyway I told him about my referral to UNC for 2nd opinion (which they still have not called) his response was my FIL went to the Mayo Clinic in Minnesota and then proceeded for 30mins tell me about that experience. While it all sounded great I’m in N.C. and don’t want to travel that far (he offered to refer me there) said only Minnesota because it’s the best.
So another Copay with no success!!
I’ve noticed that many on here have posted that their Dr’s are treating them for Anxiety. I too have been on Anxiety meds for 15 or so yrs. Wellbutrin and at night Ativan to sleep. I’ve recently started weening myself off the Ativan from 4mg a night to 2mg. I’m tired of medications and I’m scared about how long before 4mg isn’t enough. So far I’m only sleeping half the amount but when I wake up I start praying and it puts me back to sleep. With 4mg I slept through the night but with no meds I stayed awake all night thinking… thank you for venting this long Lol