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Anyone in the Encore Arikayce study?

MAC & Bronchiectasis | Last Active: Jul 29 3:05pm | Replies (30)

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@thorne

I already completed the study and it was great. I am so glad I did it. Not sure whether I had real or placebo Arikayce but I converted and have stayed negative. I lost my voice initially but then I adjusted and had no other side effects. I was very diligent about taking probiotics and drinking kefir. Let me know if you have other questions

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Replies to "I already completed the study and it was great. I am so glad I did it...."

Great to hear thay it did great on you. I was with the NTM team of Dr Addrizzo in NYU too. I am starting amikacin inhalation today. Are you on three times a week schedule? Is there any way we can prevent loss of voice or harshness? I heard rinsing with water or using honey to smooth throat. I am so happy for you for your conversion. I also have cavity but it has been stable for 2 years. Heard many positive stores about arikayce for cavity. I am positive on it!