I am at my 98th day after transplant. I saw my doctor today and he super thrilled with my progress. My numbers remain steady, and he is working me off Taco with two days this week and 1-day next week. My other anti-rejection pill has a last day this Thursday. He is checking on that for my Friday visit. My VAD nurse Christian asked when I was getting out my PICC line. I asked the Doctor, and he said if I do not mind getting stuck once a week for 3 weeks and once every 2 weeks after that then his NP will remove it Friday. I think he is more excited by my continued recovery than me. One more patient they just may have saved. My creatinine again is a bit too high. A result mostly from the Bactrim i am taking. Hard on the kidneys. So today he said he wants me to get hydration. I got it in an open bed in the children's oncology unit. Geez. Two young kids i saw and two teens. Then one in remission going to college. I can see their attitude is what keep them going. My RN says the younger ones do better as they just do what is asked her and they make friends with the staff very easily.
I chatted with my RN and found she lives in my town. She adopted a dog from the rescue in my town. It was a nice one hour.
I plan to go home on Friday. Crazy. I have been their 4 times in the last 3 weeks, not ever thinking my little cat Hazel would not be there to greet me. That will be something to walk through one day at a time.
With MDS- Myelodysplastic syndrome, I did not have the added weight of cancer cells to fight at first. Yet, every hematology doctor in the cancer department is looking for ways to sure. They will have a treatment plan if you have cancer or the effects of. I feel like my last 3 years have swirled by with diagnosis in June of 2021 for one cancer and up to today, with a bone marrow transplant 98 days ago because of MDS. I still have some tiny nodules; 2 in my lungs they are going to watch. I am not thinking cancer, and i figure the doctors reading the scans every 6 moths will now what is what. I have not had any breathing concerns as of now. a 3rd little spot has been in my lungs for 30 years. For today, other things are in my path to do.
This Thursday is my 100-day bone marrow biopsy. Having such good blood numbers nearly the whole 100 days i hope my body has remained free of the old me blood cells and let the new guy make it home. He is 26 and we want him in our bone marrow. So, for now, I hope all of you that are posting are doing well and taking it a day at a time. To those who do not post, keep reading to give you courage to possibly post.