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Should I take Big 3 + inhaled ARIKAYCE
MAC & Bronchiectasis | Last Active: Aug 5 8:40am | Replies (144)Comment receiving replies
FYI, the infectious disease Dr doesn't want to follow me. He said he will get me on the treatment but then the pulmonologist will be doing all the F/U treatment. That being said, we are pretty much left to our own devices unfortunately with the treatment. I share this as my observation , not criticism. I find out more on this forum then my Dr. re side effects. I am thinking they don't want to put negative suggestions in our head???? But then That leaves us to do our homework. I am very grateful to have found this forum.
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Hug hug pfurcht123.
I will start antibiotics next week so I will be able to share more.
I am taking estrogen as I am close to menopause period, which is proved by my NTM lung doctor, which I find gives me a lot of energy and improves my concentration. I hope this can help with side effects like fatigue. I did CT again after taking it for two weeks and my cavity shrinked a little bit. I am also taking probiotics supplement seed ds101 daily dose as it does not give me any stomach discomfort and also it is proved to be able to get into colon. Some articles say that it is case by case, some strains of bacteria in probiotics are helpful to some people, while some cause side effects to others. I will also eat home made pickle, home made almond milk yogurt, kimchi, salmon, seaweed, nuts, broccoli and banana as snack and various fruits & vegetables.
I hope we can go through this challenge smooth!