Hypothyroidism and Thyroid Cancer

Posted by whiterose67 @whiterose67, Aug 15, 2016

Hi I am new to this site.. hoping to get some help and support . Does anyone else suffer from painful feet and calves due to hypothyroidism bought on from thyroid removal?

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

JC | @jcolby | Mar 29, 2018

In reply to @blindeyepug "Thanks so much for the information! Weird how it is in females." + (show)

I have requested these additional tests and my pcp refuses. Says the tsh gives her all the info she needs. It can be frustrating. I have not had my thyroid removed but my calcium gets really high sometimes, then she takes me off it for awhile. I just want to be normal again. Is there a connection between breast cancer, which I've had, and thyroid?

loli | @loli | Mar 29, 2018

In reply to @adriennef "Thanks for bringing this issue up again, @crummens . I’ve had hypothyroidism for eight years now..." + (show)

My thyroid went caput after radiation treatment five years ago. The only side effect was weight gain before I started medication. Now it is almost impossible to loose weight. Is there any further testing I should be doing to see how it is working?

steeldove | @steeldove | Mar 29, 2018

In reply to @blindeyepug "Thanks so much for the information! Weird how it is in females." + (show)

Time to find a new primary care physician, one with a broader understanding of thyroid issues.

hoosier2 | @hoosier2 | Mar 30, 2018

In reply to @crummens "Yes, my calves ache often. Like muscle pain. I had total thyroidectomy a month ago. I..." + (show)

Just a thought! I was put on a drug called Synthroid (Sp?) and had a reaction that caused my calves to ache. I searched the drug literature and found an obscure mention of this being a possibility. Stopped the drug and the symptoms went away. I got so bad I couldn't walk for more than a short distance. No problem now! One of Dr. Sim's team at Mayo Rochester suggested that it was a lack of oxygen getting to the muscle. Turned out he was correct. Hoosier2

Adrienne, Alumna Mentor | @adriennef | Mar 30, 2018

In reply to @crummens "Yes, my calves ache often. Like muscle pain. I had total thyroidectomy a month ago. I..." + (show)

Very interesting! Thanks for sharing that information here!

Sue, Volunteer Mentor | @sepdvm | Mar 31, 2018

In reply to @adriennef "Thanks for bringing this issue up again, @crummens . I’ve had hypothyroidism for eight years now..." + (show)

You should be having thyroid levels checked yearly to monitor for correct dose of thyroid replacement.

oldkarl | @oldkarl | Mar 31, 2018

@whiterose67 Hi, friend. My " painful feet and calves due to hypothyroidism bought on from thyroid removal?" actually started well before my thyroid was removed for papillary cancer. Turns out the cause of my problem was the papillary cancer brought on by my Light Chain Amyloidosis. When Mayo-AZ took out my thyroid, they promised I would have no more foot and leg pain. Nothing could be farther from the truth. Seems my LCDD may have triggered the cancer, but it also triggered the foot and leg pain. After two years I still fight the )(*&^ leg and foot pain every day and night. Probably because the Amyloids are in my nerve chains now, and nothing can or will be done by current medical practice, especially local. My guess is that soon the Amyloids will be in the sensori-motor brain/cardiac control nerves. At least Morie Gertz implies that.

shoregal45 | @shoregal45 | Apr 2, 2018

In reply to @blindeyepug "Thanks so much for the information! Weird how it is in females." + (show)

Absolutely, not true. Thyroid is tricky and sometimes a balancing act. T3 and T4 are important and also Free T3. Has she checked out why your calcium level is high - that's also important. Don't know about the connection with breast cancer. Perhaps you may want to look for a new doctor. That's not easy especially if you like this doctor. Good luck.

shoregal45 | @shoregal45 | Apr 2, 2018

In reply to @crummens "Yes, my calves ache often. Like muscle pain. I had total thyroidectomy a month ago. I..." + (show)

Did your doctor prescribe a Synthroid substitute? I know I sometimes have leg pains and that comes from my lower back; leg cramping from low magnesium. Go figure!

shoregal45 | @shoregal45 | Apr 2, 2018

In reply to @adriennef "Thanks for bringing this issue up again, @crummens . I’ve had hypothyroidism for eight years now..." + (show)

My hypothyroidism was a result of Hashimoto's Disease and my thyroid output is virtually nil - thus the Synthroid. I also gained weight and am in the same boat.