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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@twinkie23

Thanks for your question about IVIG. I had my first ivig infusion last month for small fiber neuropathy and systemic lupus. I didn’t expect immediate results but also didn’t expect the side effects I experienced for 6 days after. I am doing another two day infusion this week with premeds to counteract the horrible headache and nausea. I would like to hear from anyone who had these side effects and anything that helped.

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Replies to "Thanks for your question about IVIG. I had my first ivig infusion last month for small..."

Sorry, I deleted my comment my neuropathy is autoimmune not idiopathic.

I would look at your infusion rate and hydration. At the beginning it is more important that the rate is very slow. And super hydration the day before, day of and day after is also very important. If you don't have any sodium issues, eating salty snacks will keep more water in your system.