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Possible Autoimmune…undiagnosed

Autoimmune Diseases | Last Active: Jul 24, 2024 | Replies (58)

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@carolinlv

First, I’m really sorry you’re going through this because I feel like I’m going through something similar and I hate it! I hardly ever feel good, I can’t make plans to do anything because I don’t know if I’ll be able to keep them, I don’t sleep well anymore which just adds to the fatigue. My stomach hurts most of the time and the list goes on, much like yours. I have an excellent GP, who, after many tests and a referral to a rheumatologist (I was able to get a referral based on a minimal result from my blood work that could’ve indicated auto immune. She did nothing but prescribe medication that did not help me) decided that I have anxiety. I have always been a bit of a perfectionist and probably worried more than most about things, but I didn’t think it required medication. I thought it was just me being the person I’ve always been. Then I realized I really am anxious, mostly about feeling bad all the time. I won’t continue my story unless any of this sounds familiar to you. If it does, let me know. If not, I hope you find answers soon. All of these symptoms together are so debilitating. I can truly say I know how you feel.

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Replies to "First, I’m really sorry you’re going through this because I feel like I’m going through something..."

I’m also sorry that you’re going through this too🌻 I’m the same…I don’t make plans anymore & I was always making plans before I became sick, always on the go, hiking, swimming, last minute adventures…you name it I was always doing something. My sleep also has become horrible. I used to sleep with no issues & wake up about 5:30am & stay awake til like 11pm. Now I’m lucky if I can stay awake for more than 3 hours & the extreme fatigue sets in. When I have a decent day I use the energy I have which is maybe an hr or so to clean or do something productive. I also get anxious sometimes too which I’ve never had before & it’s usually on the days when I start to overthink everything like what did I do wrong, should I have gone to a dr sooner & just blaming myself for getting sick. But I’ve realized this isn’t my fault & it’s out of my control at the moment until I get a diagnosis. Just remember to breathe & take it one day at a time…we will figure this out & reach out to me at anytime you need🌻🌻 prayers to you🌻

Hi, I too have stomach problems. Not sure if I am going to get sick if I go some place. Bummer. I went to my primary care today and I told her all about the symptoms I had. She too finished the visit by saying “you are full of anxiety”. Not anything I didn’t know. I started to cry because that really is my problem and has been all my life and I am 77. I am sick and tired. I have been to so many counselors in my life. I need healing. Please help me Lord. Sheila