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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
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@kim1965

Our case also was stage 4 with too many tumors on liver to count. Not eligible for surgery. 2 years later after 9 cycles of CAP/ TEM, surgery on tail of pancreas, remove gall bladder, debulk as many tumors as possible. It reduced the tumors up to 70% on liver. We then followed up with 4 cycles of PRRT, and reduced them further. I’m not a doctor, but I’m saying to ask your team, fight for your health, and find the best course of treatment for your case. Let us know what questions you have. You got this! 👍

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Replies to "Our case also was stage 4 with too many tumors on liver to count. Not eligible..."
vinnie694 | @vinnie694 | Jul 16 8:15am

I’m sorry but I’m not familiar with a lot of the abbreviations used, are any of those treatments Radiation related?

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splendrous | @splendrous | Sep 22 8:10am

Thanks for sharing. I am recently diagnosed with metastatic neuroendocrine carcinoma. Where are you getting treatment? Did you get a second opinion? Any recommendations on 2nd opinions? Thanks.

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