Does anyone have a Stim unit for their bladder and does your neuropath

Posted by leslie04 @leslie04, Jul 15 2:05pm

Hi everybody, I am having a hard time with my stims unit that is due to my bladder having no nerves or muscles working with it. I've had the unit since March. And every time the frequency needs to go up my neuropathy in my feet. Go nuts. It's been like this off and on for a while. I went into my doctor and they adjusted it to a low frequency for every setting. But it is still happening. I go in for another adjustment for the programs and frequency tomorrow. I am just getting so fed up. Feels like it's taking my freedom away. Because when I have to turn it off I have to be catheterized. Have any of you guys had to deal with this? I just want to know I'm not alone in this.

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artemis1886 | @artemis1886 | Jul 15 6:32pm

I have bladder problems. I don’t believe ours is the same. I can’t tell I have to go to the bathroom. When it happens I can’t make it to the bathroom in time. I have learned to go to the bathroom every hour whether I need to go or not. It keeps me from urinating all over myself which has happened a couple of times. Like when wheelchair assistance can’t get me through customs in time.

leslie04 | @leslie04 | Jul 17 8:15am

In reply to @artemis1886 "I have bladder problems. I don’t believe ours is the same. I can’t tell I have..." + (show)

Before they put this unit in me. I couldn't feel when I needed to go to the bathroom. I kept on having UTIs really bad. But I couldn't feel those either. So I ended up with a septic UTI. After that I realized I needed the surgery. Don't get me wrong when it works. I can feel the urge to go to the bathroom. I I know all the frustrations that you're going through. I hope that they can find something to help you.

jrcarter | @jrcarter | Jul 17 9:54am

I was diagnosed with neuropathy a little over a year ago. I had a bladder stimulator implanted in
dec.
Since then my neuropathy has gotten significantly worse. Cause and effect?

the stimulator is not helping in spite of numerous adjustments.
could that be a nerve Problem? No one cares to find out what's going on. My neurologist says I don't need any treatment. Just watch it get worse, I guess.

leslie04 | @leslie04 | Jul 17 10:45am

I keep getting told it is going to work. I had mine done in March. I am seeing a urologist that also specializes in Neurology. I am sorry this is happening to you too. I am beginning to think I also have neuropathy in my spine. Thank you for sharing with me.

carolann1952 | @carolann1952 | Jul 20 8:53pm

I have a neurogenicbladder dx more than 10 yrs ago. Had frequent UTI's until my urologist prescribed self caths 4×day. Have occasional leaks still if I drink more than usual. No more UTI's. Have no peri rectal sensation.

mroetiker | @mroetiker | Jul 21 5:03pm

I have a Stim since Dec '23, not effective yet, I keep changing programs and numbers, I can't hold the urine and don't know when to use the bathroom. The muscle does not work. I do not k ow what to do!