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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
I have the same cancer as you. I have been on lanreotide almost a year. So far I have mild stomach cramps and gas but the lanreotide hasn’t stopped the tumor growth in my liver. I go next week to the Mayo in Jacksonville to have a MRI and Pet scan. My oncologist has also suggested that I go on the Lutathera treatment. I haven’t made up my mind if this is the direction I want to go. I would like to know how other people did on this treatment. So far I feel pretty good overall, thanks to God, please keep us updated. I will keep everyone in my prayers. There is hope through Jesus. God Bless
Replies to "I have the same cancer as you. I have been on lanreotide almost a year. So..."
My prayers are with you on your decision.. I’ll definitely keep you posted on the results of my PET scan in August..
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Hello @steven1953 and welcome to Connect. It is good to find out the experiences of others who have had Lutathera treatment as along as you understand that everyone reacts differently to any treatment. That said, we do have many members who have discussed this. Here are links to those discussions,
--Interested in hearing people's experience with PRRT
https://connect.mayoclinic.org/discussion/prrt-treatment/
--My husband has had his second PRRT and is doing well
https://connect.mayoclinic.org/discussion/my-husband-has-had-his-second-prrt-and-is-doing-well/
--Update Lutethera treatments is over
https://connect.mayoclinic.org/discussion/update-lutethera-treatment-is-over/?commentsorder=newest#chv4-comment-stream-header
In these discussions you will meet other members who have had this treatment. Feel free to click on "Reply" (under the post) to comment or ask questions about their experience.
You say that you haven't made up your mind yet about the treatment. Are there any specific concerns or questions you have? Also, will you upcoming Mayo appointment be your first consultation at a Mayo facility?